Caregiving Connect

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We have a podcast that focuses exclusively on practical tips for day-to-day dementia family caregiving challenges.  It's a well listened to podcast with 11,000 subscribers around the world.  As a nonprofit, our only goal is to help other people caring for loved ones living with dementia. You can access the website and podcast at https://thecaregiversjourney.com/podcast/ or on YouTube @thecaregiversjourney https://www.youtube.com/channel/UCjqA2mxXYf93za8hqyzjkEQ  I hope this helps,Nancy 

Hello. Anyone aware of safe and secure sites for online social interaction with other mature adults? I am a caregiver for a son with special needs, work full time remotely, and therefore am quite isolated. I have tried pen pal forums without success. Scammers abound. Not interested in dating but would be interested in forming new friendships. Any suggestions would be appreciated. Thank you!

Hi, we are selling my mom's house & I am not sure what to change her address to; the assisted living facility where she resides, or my address so I am sure to receive anything important?  thoughts?  thank you!

Hello everyone, Just to give a brief recap, about a year and a half ago I was living overseas, when suddenly I had to be repatriated back to the US for emergency reasons.  When I came back to the US, I returned alone, leaving my wife overseas, and I ended up homeless for a few months.  We are both in our sixties. However, at this point I have my own apartment, and my wife has returned to the rejoin me, and we are now living together once again.   Due to my disability I'm dependent upon my wife for things such as money management, preparing meals, and navigating the local community. (I easily get lost due to poor sense of direction) So, I would like to know if it is possible for my wife to become my care giver, since she isn't really able to work, due to the fact that she must take care of me.  I've talked to a few social workers about it, but they just shrug their shoulders without telling me what steps I need to take.  Also, someo

FROM THE ARTICLE: The 10 Most Common Complaints from Family Caregivers.Experts share some of the biggest issues caregivers face and how to resolve them. By Bruce Horovitz, AARP. *** There are 7 Comments on the AARP website. Stop by to add yours. *** Published December 04, 2024. For all of the unpaid work that family caregivers do for loved ones — valued at a whopping $600 billion in the U.S. — it may seem as if they would have a lot to complain about.And they do. USE THE LINK BELOW TO READ THE ARTICLE: https://www.aarp.org/caregiving/basics/info-2024/caregiver-complaints-solutions.html

My mother (87) and my sister (64) live together. Mom has significant cognitive decline and my sister is severely mentally ill. I was durable, medical and financial POA for both. My sister has been receiving SSDI for years and my mom was her fiduciary.My father passed away a little over 2 years ago. I was in the process of settling my dad's estate when I was informed by my sister they had a new trust in which I had been relieved of all duties. My sister now had those duties. Reasons given for my removal were my desire to place mom in a nursing home and my sister in a psychiatric facility. At some point, my brother (who I am estranged) became my sister's fiduciary to maintain SSDI.I have many concerns and worries over this and no legal authority.Is it legal for my sister to have fiduciary responsibilities over our mother when said sister is under fiduciary care herself?Trust me when I say I have left out 99% of the drama.   

I am living with my mom, she is 81, and at times I want to run screaming into the night. We are both such different people since my dad passed and our normal best-friend status is being tried! I looked all over AARP and couldn't find a resource for a group that meets - either in person or online. To be honest, I feel a bit desperate.

My dad is restless. When we watch TV he will stand up and sit down.  I counted 49 times in 20 mons. At night i put him in bed and make sure his legs are on the bed. In the morning I come downstairs and he's sitting on the bed with his head on the pillow and feet on the floor. Now, he has a tumor on his rectum, I know it's uncomfortable.  What else can I do though? He says it's hard for him to get his legs up on the bed, though I've seen him do it. He gets up so much during the night. I already am awake 20 hours a day. Are there any tips? Has anyone been through a restless patient ?

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I am a caregiver (m, 49) for my dad (82), who has rectal cancer. He watches the same show over and over again at night and it drives me crazy, and it makes me angry when he talk about it and looks forward to it.  Is this a just reaction? Has anyone been through this?  I feel trapped and maybe watching this over and over makes me feel it more, idk.  We've seen these episodes dozens of times, he doesn't even really follow them but he likes them. 

We did an Irrevocable Trust for Medicaid for my now deceased mother-in-law. I am trying to figure out if we need to file some type of tax return with the IRS. The money put in to the Trust came directly from her regular checking account. This money can only be paid to the nursing home. It was her income from Social Security, her pension and VA Aide and Attendance. I already filed her 1040 IRS form and that was all "taxed" there. I would think there would not be any tax paid on the Trust. There was no income generated. Has anyone ever had this specific situation?

Trying to find specifications on medical alert devices.  Need a mobile device with fall detection. Want pendant type but want a light weight small one. Are there any recommendations or where can I go on internet to find the weight and dimensions of the devices for Comparison? 

Dear Ma'am or Sir.I consider myself a rookie when it comes to being a caregiver to my spouse. I'm wondering - is there a place in Central Ohio where caregivers can get together oncein awhile - and share with each other how caregiving affects their mental health. Has there every been created a group - locally, regionally, and/or nationally calledCA (Caregiving Anonymous) - similar to AA (Alcoholic Anonymous) or what a grougmaybe called DA (Drug/Substance Abuse Anonymous) in the Central Ohio area. Respectfully,Kenneth StalderU.S. Army Veteran & Patriot

Hello, although I try to keep up with AARP news, this is the first time I've ever used the forum.  So, if I'm doing so in the wrong place, I apologize. Anyway, I live alone, which I have and like for the past 15 years or so. Recently, I've had some health issues, and I fractured one of my lower vertebrae. Day to day jobs have become more difficult, and I'm considering hiring a personal assistant. I live in the Houston area, and was wondering if anyone had any suggestions on who I might talk to.  Thank you and God bless. James 

My sister and I are caring for our mother at home.  She is 92.  She can't walk, even with a walker so getting her out of the house to have a dentist check out what appears to be an inflamed tooth, is impossible.  She can no longre even get to the doctor.  She is under a doctor's care, with video appointments.  Her doctor and insurance company both say they know of no options to have her treated.  I have exhausted all efforts I can think of to locate a mobile dentist.  Anyone out there know of such a service?  I appreciate your response.The Sisters

Hi everyone,I’m excited to share a project I’ve been working on—a personalized virtual caregiver designed to assist individuals who may struggle with memory-related challenges, such as forgetfulness or conditions like dementia or Alzheimer’s.The tool acts as a supportive helper, offering features like:Gentle reminders for medications, appointments, or daily tasks.Regular check-ins to ensure tasks are completed and provide a sense of connection.Feedback loops for caregivers and doctors, helping to refine care plans based on the user’s needs.This isn’t about replacing human caregivers or doctors—it’s about enhancing their care by providing real-time assistance and improving communication between everyone involved in caregiving.I’d love to hear your thoughts:What features would make this most helpful for you or someone you know?Are there specific challenges you think this tool could address better?Do you have any concerns or suggestions about using virtual tools like this?Your feedback wi

  What are the requirements for a nursing home to get replacement dentures for a patient that has broken theirs?  My aunt is in a nursing home (Medicare & Medicaid) and has broken her upper plate. Her weight has now dropped to 87lbs and the nursing home is saying it's not their responsibility.  HELP!  

Who and how do I pay taxes on the interest of a irrevocable trust?  The trust is to support the expenses to take care of my 92 year old mother in assisted living.  I would control those funds.   My mother is 92 and lives alone at home.  She is ready to move to a assisted living facility.  I received the following advice/info from a family law paralegal friend:   She is currently qualified for Medicaid, but she will lose that eligibility when she sells the house.  Its been recommended she take the profits from her home (300k) and create a IRREVOCABLE Trust with myself as the beneficiary/control of funds.  The purpose of creating a trust is to satisfy the 5 year lookback for Florida Medicaid eligibility IF she needs Medicaid AFTER the trust has existed for 5 years.   Im trying learn more about the tax ramifications.  Would this normally be a GRANTOR or NON-GRANTOR type ?  If it has its own TAX, what is t

Managing urinary incontinence can be challenging, especially when navigating the complexities of Medicare coverage for solutions like the PureWick® Urine Collection System. This non-invasive system offers a hygienic and comfortable alternative to traditional methods, but understanding whether it's covered under Medicare can save you both time and money.Here’s a quick summary of what you should know:Medicare Part B: Covers 80% of the cost for Durable Medical Equipment (DME) like external catheters if deemed medically necessary.PureWick Coverage: While Original Medicare doesn't routinely cover PureWick, some Medicare Advantage plans may include it as a supplemental benefit.Tips to Save: Explore Medicaid benefits, private insurance options, or manufacturer discounts to make the system more affordable.Want to dive deeper into how Medicare can support your needs for urinary incontinence devices like PureWick?👉 Read the full guide here: Medicare Coverage for PureWickIf you have questions or

 KFF Health News 12/02/2024 - Homebound Seniors Living Alone Often Slip Through Health System’s Cracks  Across the country, about 2 million adults 65 and older are completely or mostly homebound, while an additional 5.5 million seniors can get out only with significant difficulty or assistance. This is almost surely an undercount, since the data is from more than a dozen years ago. It’s a population whose numbers far exceed those living in nursing homes — about 1.2 million — and yet it receives much less attention from policymakers, legislators, and academics who study aging. Consider some eye-opening statistics about completely homebound seniors from a study published in 2020 in JAMA Internal Medicine: Nearly 40% have five or more chronic medical conditions, such as heart or lung disease. Almost 30% are believed to have “probable dementia.” Seventy-seven percent have difficulty with at least one daily task such as bathing or dressing. Almost 40% live by t

*** 1 Comment on the AARP Website. Stop by to read comments & add yours. *** FROM THE ARTICLE - SEE ARTICLE FOR MORE!!! How to Manage Sibling Relationships Strained by Family Caregiving. Experts say the key to handling family discord is for parents to make caregiving wishes and expectations known early. By Christine A. Di Pasquale, AARP. Published November 25, 2024. Sarah Ferguson* had a close relationship with her only sister until their mother’s health declined and her sister became involved with a man who seemed more interested in their mother’s money than in her well-being. “It just got very ugly when he was in the picture and he was trying to, I think, keep [my sister] away from me and my family,” explains Ferguson, 59. https://www.aarp.org/caregiving/life-balance/info-2024/manage-sibling-conflict-relationships.html

My wife is starting to act strangely? But, first you need some background about her. Back in March of this year she had Colon Cancer surgery, So has a very low tolerance to pain and is very vocal when something is hurting her such as a scream or yells out loudly. She ended up in the hospital for 30 days when they thought she would be out in a normal case in 3 to 5 days. No to present Nov. 2024. She just had right hip replacement surgery and was sent home the same day, I am trying my best as her husband to care for her alone, but now she seems to be very glassy eyed and can't think of words she is trying to say. She is sleeping in a separate bed and she called out for me and she doesn't remember doing it, This was in the middle of the night. Also her Mother had Dementia too. Suggestions are welcomed. Worried Husband 

FROM THE ARTICLE - SEE ARTICLE FOR MORE!!! AARP's New Military Caregiving Guide: Essential Resources for Veteran Caregivers. Navigate challenges and find resources, step-by-step. By Amy Goyer, AARP. Published November 12, 2024. In the 1980s, I cared for my grandfather, C. V. Goyer, a veteran of World War I, World War II and the Korean War, and more than 20 years later, I cared for my dad, Robert Goyer, a WWII and Korean War veteran. Throughout both experiences, I often struggled to find support. When caring for my grandfather, resources were limited. By the time I was caring for my dad, there was more support, especially from the VA, but I spent countless hours navigating his benefits, applying for them and managing them — often an arduous and frustrating process. Since Dad’s passing in 2018, support for veterans and their caregivers has expanded even further. That’s why I felt so passionate about updating AARP’s Military Caregiving Guide for Veterans, Service

I'm so overwhelmed and hoping someone can point me in the right direction. My parents are at the point where they need either in-home care or assisted living options, and while I can certainly research local assisted living options on my own, I have no idea where to even begin to look for other programs or options that could help them. I'm not sure if a home aid is better, and how to find someone who isn't going to take advantage, steal from them, or treat them poorly. In addition to VA benefits, is anyone familiar with any Florida programs that can assist with expenses, anyone that can help me ensure that they will not being taken advantage of when it comes to any contracts they need to sign, and any direction or insight or a step-by-step for how to help them in general? Is there a program that helps explain options to me so that I can explain it to them?