Seeking non-Medicaid caregiver financial support
Hi, I'm new here and did a little searching and couldn't find anything directly relevant. Just a few articles and comments about how expensive it is to be a caregiver. Sorry if this is too long or in the wrong place.
My mother, who lives at home alone in another city in the same state, is starting cancer treatment. She might be able to get some caregiving through Medicare or long-term care disability insurance but not both at the same time. She does NOT qualify for Medicaid and is NOT a Veteran. She may have applied to a state agency, I don't know. She's very overwhelmed and fearful, but also resistant to help while clearly needing it and is not transparent with her finances.
However, she very quickly will probably need 24-hour care, maybe semi-skilled nursing, including a petsitter, and possibly hospitalization. Neighbors and family members not very nearby might provide some help, but it likely won't be enough.
I heard years ago there was a program that would reimburse family members for doing caregiving, something about $85 a day. I cannot find anything about this, though. My suspicion is it doesn't really exist. But I literally do not have the resources to just quit my job, leave my rental housing, rely upon my old car to make trips back and forth, and my own healthcare insurance which I am actively using will not work in her city. If I get a job there, I wouldn't have the time or energy to help her much, especially to be on call overnights. I really don't know how people do it.
I'm feeling a lot of overwhelm and guilt at not being rich so I can just drop everything to go be what would really be a 24-hour a day job, unless some caregivers can be provided through insurance.
None of the "resources" AARP et al. have provided have led anywhere so I'm trying this. Thanks for any leads. Hopefully I can find this website and discussion again.