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kj2592288
Contributor ⭐
September 7, 2026

Hello from TN

  • September 7, 2026
  • 1 reply
  • 33 views

New here, I am my husband’s caretaker, he has advanced Parkinsons.  We have been married 52 years, both retired.  Most difficult is I never get to have ‘me’ time and worry what will I do if he gets bed bound.  Uses rollator in home very slowly and wheelchair away from home.

      1 reply

      SereneSeagull
      SereneSeagull
      Community Champion ⭐⭐⭐
      September 7, 2026

      Hi ​@kj2592288 , Glad you’re here.  Congrats on 52 years!  
       

      Not sure what resources you’ve contacted, but others have found that their local  Area Agency On Aging has been helpful and a good place to start.  You should have one near you.

       

          ➡️ Heres some info.  https://www.usaging.org/how-aaas-support-you
       

        As an aside…Absolutely important that you get your  “me time”.  When I was in my late teens I helped those taking care of their loved ones get their much needed time away for a few hours.  I didn’t get paid much really, but I’ll tell you the reward of sitting with this one gentleman, listening to his stories growing up was what I remember  the most.  I’d sit and talk, make lunch, watch TV and just be present for their loved ones, while the caretakers were able to get some time away from the house, get their hair done, play cards with their friends or go to their own doctor appointments.  This gave them a scheduled day that they could count on, and gave them respite as well.  There are local civic organizations that can help you, I’ll bet. Church volunteers.  It can be very overwhelming dealing with day to day situations.  
       

      Glad you’re here!  😀

       

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