Hello from TN

Hi ​@kj2592288 here is a caregiving guide to resources in your state that you may find useful: https://www.aarp.org/states/tennessee/caregiver-resources/

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I just wanted to add a couple things to what Serene said. Along with the Area Agency on Aging, it might be worth asking your husband's neurologist or his care team if there's a Parkinson's Foundation chapter near you in TN, they often have caregiver support groups specifically for Parkinson's, which can be different from general caregiver groups since the disease progresses in its own particular way. The Parkinson's Foundation helpline (1-800-4PD-INFO) is also a good resource if you want to talk through what's coming next, including questions about mobility changes and eventually needing more equipment or help at home.

On the "me time" worry, you're not wrong to think about it now, before you're in crisis mode. Some Medicare Advantage plans and VA benefits (if he's a veteran) include respite care hours, so it's worth checking what you might already have access to. Even a few hours a week, on a set schedule like Serene mentioned, can make a real difference over time.

Hi ​@kj2592288 , Glad you’re here.  Congrats on 52 years!  
 

Not sure what resources you’ve contacted, but others have found that their local  Area Agency On Aging has been helpful and a good place to start.  You should have one near you.

    ➡️ Heres some info.  https://www.usaging.org/how-aaas-support-you
 

  As an aside…Absolutely important that you get your  “me time”.  When I was in my late teens I helped those taking care of their loved ones get their much needed time away for a few hours.  I didn’t get paid much really, but I’ll tell you the reward of sitting with this one gentleman, listening to his stories growing up was what I remember  the most.  I’d sit and talk, make lunch, watch TV and just be present for their loved ones, while the caretakers were able to get some time away from the house, get their hair done, play cards with their friends or go to their own doctor appointments.  This gave them a scheduled day that they could count on, and gave them respite as well.  There are local civic organizations that can help you, I’ll bet. Church volunteers.  It can be very overwhelming dealing with day to day situations.  
 

Glad you’re here!  😀