I am confused here. So I have a few questions about what tax changes are being supported here and would like some clarity so I can understand it better.
The way I am understanding this -
1. This could be purely the family caregivers choice to provide for these aged, incapacitated parent(s). IOW, there would be another way already in existence for these aged, incapacitated parent(s) to get care but that is not the choice of the caregiver or maybe not the choice of the care-receiver.
2. I thought there was already a way to deduct some of these medical expenses or receive some sort of a tax credit. AARP 03/04/2021 - Tax Tips for Family Caregivers - Caring for a loved one could make you eligible for deductions and tax credits
3. Medicare covers a lot of medically necessary DME - Medicare.gov - Durable medical equipment (DME) coverage The ACA also covers some medically necessary DME.
When would the caregivers tax credit come into play - is it only when there is an expense actually paid for the patient? would that have to be a medically necessary expense or only one that is thought to be that way? Or would it be a sort of earned credit - giving some credit for a family caregiver to travel to and from the residence of the patient to clean it, prepare meals, fix medications, wash clothes, etc. just things so the patient can maintain a certain aspect of independent living? Or care for them at the family caregivers home?
I know many family caregivers that are more hands-on than doing a lot of investigating into programs and services that can possibly help them financially and time-wise. Or they don't understand the systems that are already in place and thus pay for things they don't really have to and just do it because it is much easier.
It seems we are again talking about those patients in the middle - make too much or have too many assets for Medicaid help but make too little to pay for the care they need or want or what their family caregivers think the patient needs or wants.
I am not trying to be cold or ornery, I am just confused here. As I have said before here and got some real repercussions - For me, I do not want anybody to stop their life for me and I have made plans along that line.
I still feel this is a choice for the family caregiver - it doesn't have to be this way; other arrangements could be made in most cases. OR can they?
I spent over half of my life as a guardian for my mother(officially). That included keeping her as independent as long possible and then making decisions as to her care after that when her health really started to fail. I took care of my husband who was diagnosed with terminal cancer at 57; I was 56 - we were self employed for over 38 years and our income pretty much stopped completely at the time he was diagnosed.
There was (1) time during all of this when my mother fell and broke her hip (she was deaf and could not hear anything that the medical workers, hospital and then rehab, was saying to her) and my husband had a lot of chemo and radiation therapies - it was palliative care since he had a bucket list to finish.
I wasn't worried about finances - I was worried about my sanity cause it was quite a schedule I was keeping.
It's Always Something . . . . Roseanna Roseannadanna