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It has been 12 years since my son passed away from Huntington's disease; which he inherited from his father.  Long story short neither of us knew at the time of a family history.  Dad was placed when my son was 9 months old.  My son was diagnosed at ...
BrendaI912467 08-05-2022 09:09 AM
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Gail, I can only speak about my own personal experience.  Essentially, my situation was very frustrating not with my son's illness, needs, etc, but more from the system that never provided for his needs.  My son inherited a genetic disease from his f...
BrendaI912467 04-02-2021 03:48 PM
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2
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5663
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Caregiving is a full-time job with no vacations, weekends, holidays, guarantee of sleep through 1 night or more and financial hardship.  I feel all 0f us caregivers experience these events.  The biggest stress for me out of the 14 years of caregiving...
BrendaI912467 04-02-2021 03:03 PM
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Reply
3
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5680
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yup!  The best part of my membership to this organization is the forum groups that are super supportive.  It is amazing to me!  I have belonged to several over the years, but have not had the pleasure of this one till  now.  My older brother who did ...
BrendaI912467 03-01-2021 08:44 AM
0
Replies
2
Kudos
11158
Views
One more note.  I am and have gone through the same garbage with estate plans.  For me at the present time i have 2 older sisters and people have not been there for me over the years with all the trauma i have gone through, but when there is money or...
BrendaI912467 02-27-2021 06:39 AM
0
Replies
2
Kudos
11310
Views
It has been 12 years since my son passed away from Huntington's disease; which he inherited from his father.  Long story short neither of us knew at the time of a family history.  Dad was placed when my son was 9 months old.  My son was diagnosed at ...
BrendaI912467 08-05-2022 09:09 AM
0
Replies
0
Kudos
3194
Views
Gail, I can only speak about my own personal experience.  Essentially, my situation was very frustrating not with my son's illness, needs, etc, but more from the system that never provided for his needs.  My son inherited a genetic disease from his f...
BrendaI912467 04-02-2021 03:48 PM
0
Replies
2
Kudos
5663
Views
Caregiving is a full-time job with no vacations, weekends, holidays, guarantee of sleep through 1 night or more and financial hardship.  I feel all 0f us caregivers experience these events.  The biggest stress for me out of the 14 years of caregiving...
BrendaI912467 04-02-2021 03:03 PM
1
Reply
3
Kudos
5680
Views
yup!  The best part of my membership to this organization is the forum groups that are super supportive.  It is amazing to me!  I have belonged to several over the years, but have not had the pleasure of this one till  now.  My older brother who did ...
BrendaI912467 03-01-2021 08:44 AM
0
Replies
2
Kudos
11158
Views
One more note.  I am and have gone through the same garbage with estate plans.  For me at the present time i have 2 older sisters and people have not been there for me over the years with all the trauma i have gone through, but when there is money or...
BrendaI912467 02-27-2021 06:39 AM
0
Replies
2
Kudos
11310
Views
It has been 12 years since my son passed away from Huntington's disease; which he inherited from his father.  Long story short neither of us knew at the time of a family history.  Dad was placed when my son was 9 months old.  My son was diagnosed at ...
BrendaI912467 08-05-2022 09:09 AM
0
Replies
0
Kudos
3194
Views
Gail, I can only speak about my own personal experience.  Essentially, my situation was very frustrating not with my son's illness, needs, etc, but more from the system that never provided for his needs.  My son inherited a genetic disease from his f...
BrendaI912467 04-02-2021 03:48 PM
0
Replies
2
Kudos
5663
Views
Caregiving is a full-time job with no vacations, weekends, holidays, guarantee of sleep through 1 night or more and financial hardship.  I feel all 0f us caregivers experience these events.  The biggest stress for me out of the 14 years of caregiving...
BrendaI912467 04-02-2021 03:03 PM
1
Reply
3
Kudos
5680
Views
yup!  The best part of my membership to this organization is the forum groups that are super supportive.  It is amazing to me!  I have belonged to several over the years, but have not had the pleasure of this one till  now.  My older brother who did ...
BrendaI912467 03-01-2021 08:44 AM
0
Replies
2
Kudos
11158
Views
One more note.  I am and have gone through the same garbage with estate plans.  For me at the present time i have 2 older sisters and people have not been there for me over the years with all the trauma i have gone through, but when there is money or...
BrendaI912467 02-27-2021 06:39 AM
0
Replies
2
Kudos
11310
Views
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Date Registered ‎02-22-2021 02:17 PM
Last Visited ‎11-24-2023 07:05 PM
Total Messages Posted 9
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