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Re: Caregiver: Share Your Travel Story

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             I retired early to become a caregiver for my husband with a diagnosis of ALS.  He has participated in five annual National Veterans Wheelchair Games (NVWG).  We have driven across the United States to Texas, Utah, Ohio, Arkansas, and Florida.  The Big State of Texas attracted over 700 athletes in wheelchairs.  Caregiver networking or speaking with other folks having similar challenges is such a benefit and so supportive.

             Accessible bathroom facilities are the challenge during long road trips.  The Interstate highways usually have adequate stalls but pack a personal bag to carry in; just in case.  Off the interstates, we have found that the commercial about neighborhood pharmacies being on every corner is mostly true.  Walgreens and CVS both have accessible bathrooms! Blessing be upon them. 

 

I couldn't position this photo correctly.  The benefit of a Road Trip is stopping at National Parks

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Re: Caregiver: Share Your Travel Story

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We flew from Seattle to San Fran then took the Amtrak special scenic train to Santa Barbara.  We brought a wheel chair and 2 carry ons.  I had a backpack to carry snacks and jackets.  I let the airline and train personnel know we would need help.  The airline was fine, but the train personnel were pretty stretched.  We kept our humor about us and did fine. Planning clothes and food and logistics the key.  As a caregiver, it was important to grab rest and personal care time with minimal impact to my husband.

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Re: Caregiver: Share Your Travel Story

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It may not be easy, but if you are going to family it is worth the problem

Contact the airline and apprise them of your situation( my husband had a problem with bladder control ) so I found diapers that were not too bulky  We found a family bathroom and tried to use it before the flight

It was not a very pleasant flight for him, but seeing our first grandchildren ( twins ) was worth it !!!!

 

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Caregiver: Share Your Travel Story

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Do you travel with a loved one you're caring for? Share your experiences here--where have you gone, what did you do, what challenges have you faced, and what tips do you have for overcoming these challenges.

 

And, be sure to share any photos and video (links to the video) from your travels, if you have any.

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