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Re: resolve post-statin myalgia ?

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Hi - no I've tried 3 different statins and was on the first one maybe more than a year before I started having myalgia. The second one didn't take as long and the last one was the generic lipitor and hit me hard right away. I just mean I still have the pain even though I've stopped the med.

I've read some references to a sub-group of patients whose myalgia doesn't resolve after discontinuing the statin, have not much discernable swelling, exercise makes worse, not better, and some other criteria that seem to fit my situation.

It's an auto-immune reaction, but appears to be rare so I need to see a specialist to be sure.

Somewhere else, I read that just "regular" myalgia can take up to 14 months to resolve and I'm only at about 6 or 7. Mine isn't improving but not getting worse either.

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Re: resolve post-statin myalgia ?

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I'm confused about the situation. You're stating you have 'post statin' myalgia. That means, you got symptoms after you stopped taking the meds (unless I misunderstand how you're using the word)?  But, you appear to have a problem when you're actually on the meds.

   Am I not understanding? 

 

   I had myalgia with Lipitor. It took a couple of years to develop. I switched to a generic Crestor (I get from Canada) and so far, no issues (and the generic keeps cholesterol down).

 

   Is your issue more complicated?  If you are simply talking about pain from statins, it's common.But, there are a lot of statins.


"...Why is everyone a victim? Take personal responsibility for your life..."
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Re: resolve post-statin myalgia ?

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thanks so much - that answers my question about what kind of doctor to see....I've seen 2 papers now on Medscape about an auto-immune reaction, but it is very rare.One of those papers specifically warns about taking a statin while being on certain anti-depressants and I'm on 2 of them!  I'm seeing my PCP tomorrow and that will be interesting (I'm gonna ask him if he can pull his pants up with one arm!)  Let this serve as an example to everyone, we have to be proactive...these doctors are just too overworrked to keep up with it all.

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Re: resolve post-statin myalgia ?

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I would definitely go to a rheumatologist.  If you have written down the dates of your taking the statin drugs and documented the arrival of the pain and the way it's affected your and your activities of daily living, it would be very helpful in helping the rheumatologist understand your history and formulate a diagnosis.

 

No one should have their symptoms ignored and should never feel that they are being "laughed out of the office."  Post-statin myalgias are a very real problem and deserve investigation and treatment.

 

Good luck!

“The third-rate mind is only happy when it is thinking with the majority. The second-rate mind is only happy when it is thinking with the minority. The first-rate mind is only happy when it is thinking."
War With Honour, 1940 ~ A.A. Milne
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resolve post-statin myalgia ?

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I'm not sure how to find a specialist doc for this. When I've mentioned it to my primary care doctor, and my endocrinologist they pretty much just blew me off. I had to just refuse to take the statins anymore and it's been 6 months, yet I see many articles on Medscape about it. I even found an article describing a genomic based sub-group that really seems to apply. The thinking is that this is an inflammatory process

 

I don't want to have to go doctor to doctor being laughed out of the office...this is real...in my left arm affects daily life...lifting, driving, pulling up my pants!

Should I look for a rheumatologist? What should I do/ask to find out if they would consider this problem?  

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