National DES Awareness Week April 23 - 29, 2023

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DES (Diethylstilbestrol) Info Association:  

April 2023 marks the 52nd anniversary of the DES cancer link being made at Boston’s Massachusetts General Hospital. 

In 1985, President Ronald Reagan dedicated this week as National DES Awareness Week April 21-27, 1985.

Join us in honoring our 45 years of Advocacy for the DES Exposed Community as part of this year’s - DES Awareness Week!

This has been an active year for DES Info Association. 

• 2022 DES Awareness Week Pleased to have building/bridge Illuminations for a second year.
• DES Son: Scott Kerlin, Ph.D. is working closely with us and sharing his research studies. He is the lead advocate for DES Sons International. As a DES son, he has focused on qualitative research about DES sons’ reproductive health issues.
• D.E.S is it: France - Met with Déborah Maitrejean and  Salomé Maitrejean the DES Granddaughters from Lyon, France.  We enjoyed a wonderful meeting in Paris.  They are the leaders of D.E.S is it.  The Mission is to face the big challenge of the recognition of this major health crisis.
• Congressman James P. McGovern’s (Massachusetts) on February 2, 2023, sent a letter requesting an apology to the United States Department of Health and Human Services for approval of diethylstilbestrol (DES) for use in pregnancy, and for the enhancing NIH research funding for health and reproductive harm across generations of DES-exposed.
• Petition for an Apology for DES  Seeking an Apology for "The Forgotten Population" the DES Exposed initiated by DES Info Association https://www.change.org/p/seeking-an-apology-for-the-forgotten-population-the-des-exposed
• The BBC Segment: Poison in the Womb https://www.bbc.co.uk/sounds/play/m001jsq1
• An Apology in Scotland - Historic Moment: The Scottish Parliament and an Apology – The First Minister Nicola Sturgeon, of Scotland, spoke about Historical Adoption Practices and the use of Stilbesterol.

“I wish to say to all of the mothers and fathers who lost their children and to the children given up for adoption, who have suffered decades of pain…A sincere and heartfelt apology.  We are Sorry” https://www.scottishparliament.tv/meeting/meeting-of-the-parliament-march-22-2023?clip_start=14:52:0...

• The Sunday Post – Scotland ‘Three words to change the world’: Nicola Sturgeon pays personal tribute to campaigner after forced adoption apology “We are sorry” https://www.sundaypost.com/fp/three-words-to-change-the-world/?utm_source=sendinblue&utm_campaign=Ma...
• Historical Presentation by Dr. Arthur Herbst 2011: https://www.youtube.com/watch?v=doSpbfDcJHc.

 

2023 Research Studies published have identified more significant health concerns related to DES [Diethylstilbestrol] exposure: Please contact us for the robust DES Timeline at DESInfo411@gmail.com

■ NIH/NCI updated information on website https://dceg.cancer.gov/research/what-we-study/des-study?fbclid=IwAR3xbNQvzk1flDs9fzXTpdmJPtSkzoS-1f...

■ “Birth Outcomes in DES Children and Grandchildren: A Multigenerational National Cohort Study on Informative Families” Our retrospective observational study highlights a multigenerational and likely transgenerational effect of this EDC in humans. (Int. J. Environ. Res. Public Health 2023, 20(3), 2542; https://doi.org/10.3390/ijerph20032542 Published: 31 January 2023)

■ “Postmenopausal Vaginal and Cervical Cancer Risk Related to In Utero Diethylstilbestrol Exposure” Diethylstilbestrol-related malignancies are rare in those older than 50 years. Current cervical cancer screening guidelines recommend cessation of screening in an average risk, adequately screened patient at age 65 years, but patients exposed to DES have historically received lifelong screening. (Journal of Lower Genital Tract Disease 27(1): p 35-39, January 2023)

■ “Clear cell carcinoma of the **bleep** and cervix” Clear cell carcinomas of the **bleep** and cervix are rare. The most well-established risk factor for these cancers is exposure to diethylstilbestrol (DES) in utero. Five-year survival rates are slightly better for women with DES-related clear cell carcinomas of the **bleep** or cervix as compared with those who were not exposed to DES. “Diagnosis and Treatment of Rare Gynecologic Cancers 2023, Pages 265-276)

■ “Association of Preterm Birth and Exposure to Endocrine Disrupting Chemicals” Revealed sufficient evidence of a potential association between EDC exposure and risk of Pre-Term Birth. (J. Mol. Sci. 2023, 24(3), 1952; https://doi.org/10.3390/ijms24031952)

Scientists have discovered that this drug changed specific DNA in those exposed in utero to DES. It has now been shown to be a multigenerational mutagen and health concerns have been noted into the third generation.

DES (diethylstilbestrol), a teratogenic and carcinogenic synthetic estrogen often called "the hidden Thalidomide," is considered one of the world’s greatest drug disasters. It was prescribed to millions of pregnant women for decades: from the 1940s into the late 1970s. Millions of DES Mothers, Daughters, Sons and Grandchildren are dealing with these effects of DES exposure every day and some have lost their lives due to their exposure all too young.

The finding of new effects of the DES Tragedy continues: Persons exposed prenatally to DES could be more prone to develop Diabetes, Cardiovascular Disease, Coronary Artery Disease, Myocardial Infarction, High Cholesterol, Hypertension, Osteoporosis and Fractures, risk of Gallbladder Disease and Pancreatic disorders and malignancies and ADHD in the third generation.

Together We Are Stronger, and we are keeping our story alive! Knowledge is Power!

DES Info Association is the one free source for ongoing DES Information

For more information, contact Karen Fernandes at 972-820-8400 or DESInfo411@gmail.com www.facebook.com/DESInfo

DES Info Association continues to honor National DES Awareness Week April 23 – April 29, 2023