Do you or anyone you know suffer from tinnitus?

AARPTeri · ‎05-15-2015

Do you or anyone you know suffer from tinnitus? What is your experience, discuss with others here!

AARPTeri

JanieF501684 · ‎06-20-2021

I have had tinnitus for about 15 or more years now. I thought for many years that maybe I had a bad habit of not paying close enough attention to what people were saying, because I just couldn’t seem to hear what a lot of people were saying, but then I started having major BPP vertigo & in the process of testing found out that I had a significant hearing loss as well as a balance issue on top of the vertigo. I have no way of knowing for sure what caused them, but 1) a large portion of my dads family are either deaf or extremely hard of hearing, 2) I know that I had major falling issues as a young child, 3) I worked for a major airline dealing with aircraft engines, & 4) I was hit by my parents on or by my ears as punishment as a child, so any or all of those may play a part in my issues. The tinnitus has gotten worse over the last couple years to where I have a difficult time being able to fall asleep at night. I do have hearing aids & have had for about 3-1/2 years now, which did help for a while, but has become worse since I got them. I am interested in the person that said magnesium supplements helped them, because I just recently started taking a 400 mg supplement myself for muscle spasms that are not caused by lack of potassium or electrolytes. It will be interesting to see if it helps my tinnitus. Thanks for everyone sharing their situation.

k955617m · ‎06-20-2021

I had severe Mereirs disease for more then 20 years. The side effects of that was tinnitus. Nothing really help the menieres. After about 15 years of near debilitating vertigo, I read a study by the Mayo Clinic about research into the affect of Magnesium on Meniers. After a regiment of Magnesium (400 mg) and a diuretic for about 2 years the Meniers essentially went into remission (except for an de annual flair up). However, i still have the tinnitus because Meniers trashed my inner ear.

aruzinsky · ‎06-20-2021

@JanieF501684 wrote:
I am interested in the person that said magnesium supplements helped them, because I just recently started taking a 400 mg supplement myself for muscle spasms that are not caused by lack of potassium or electrolytes. It will be interesting to see if it helps my tinnitus.

I took 400 mg/day for a reoccurring charley horse in my right calf. It stopped the charley horse but did nothing for my tinnitus. During my next blood tests I paid $20 extra to measure blood magnesium because apparently my Medicare Advantage Plan doesn't cover it. Remarkably, my blood sodium dropped below normal so I suggest that you have yours checked.

So, I changed to 200 mg/day of magnesium.

CarryAnne · ‎05-24-2021

I hear that tinnitus is a side effect of the Covid vaccine, which also worsens the ringing for those already suffering with the condition. Has anyone had this experience?

American Tinnitus Association: https://www.ata.org/tinnitus-and-coronavirus

Tinnitus Talk Support: https://www.tinnitustalk.com/threads/i-now-have-tinnitus-after-receiving-the-pfizer-covid-19-vaccine...

t588602d · ‎05-12-2021

I’ve had tinnitus for 20 years now, as a result of the antidepressant I take. It’s an unfortunate potential side effect of the medication. I have severe depression & over the years I tried other medications that were not helpful at all. When I tried the current antidepressant, it changed my life and thankfully it controls the depression symptoms very well. I would love to not have tinnitus but would have to wean off the antidepressant, which would take about 6-8 weeks, and I have no idea how long the tinnitus would take to resolve, if it even would at this point. I also don’t know how bad the depression would get once weaned off the med. Much of the time the tinnitus doesn’t “bother” me because I keep myself busy so don’t think about it. It sounds like white noise & I have no problem going to sleep. I also don’t think it affects my hearing, although I haven’t had an audiology exam in over 10 years so that’s next on my to do list. I’m 67.

k955617m · ‎05-11-2021

I have had Meniers for about 25 years. The side effect of that is loss of hearing and tinnitus. I had a hearing aide 10 years ago or so. But it amplified the tinnitus so after a bit of time I stopped using the hearing aide. Even with current technologies I am reticent to invest in a hearing because I am not confident it will work with the tinnitus

aruzinsky · ‎05-11-2021

About 25 years ago, I had a brief episode of Meniers and it was one of the worst experiences in my life. I was so dizzy that I couldn't read large lettering to dial 911. I remember crawling on my stomach on my lawn while vomiting. My neighbor noticed and called 911 for me. I got a ct scan that didn't show anything abnormal. My doctor told me that it was probably due to a viral infection.

This happened while I had tinnitus, which didn't change because of Meniers.

Phenelope77 · ‎05-12-2021

I had a similar episode... thought I was having a stroke ...My ENT did a VNG test and said “ i’m sure you have a problem I just can’t find out what it is”... approximately three weeks later I woke up one morning with Nightes Nightes horrible horrible experience...

Phenelope77 · ‎05-12-2021

Sorry should have been tinnitus .

Anitasmolik · ‎05-06-2021

I was diagnosed with Meniere's Disease in 1999. I not only had tinnitus, but dizzy spells, vertigo, and vomiting at times. I was told to keep my sodium level to 2000 mg. or less a day, and limit my caffeine and alcohol. I also got hearing aids, as I lost hearing, mostly in my left ear. Since then, my tinnitus is a lot less. If I ingest a food item with too much sodium (usually in a restaurant where I not always can limit my sodium), my tinnitus goes up, so I know that is the cause.

k955617m · ‎05-11-2021

The radical affects of meniers subsided about 5 years ago ( vertigo, etc) but the tinnitus got worse since then. 400mg of magnesium & a daily diuretic while keeping sodium < 1200 MG was the key to reducing the radical part of meniers

MichaelB854531 · ‎02-16-2021

The hearing aids I recently got apparently have programing that does lessen the impact of my tinnitus. My tinnitus is in the higher frequency - like being in a jet aircraft - so there is a boost from the hearing aid.

The one thing I wish I could figure out is what triggers my tinnitus to get louder. Sometimes it recedes into the background to the point I don't notice it, but other times is is so loud it makes concentrating difficult.

I'm lucky that the frequency of the sound is right where our "white noise" generator's "surf" sounds" are so that I don't have too much of an impact on my sleep.

NaderF126695 · ‎03-27-2021

I have had intermittent luck with trigger point massage around my neck, ear, jaws, temples, and generally some seemingly irrelevant muscles of the head.

Trigger points are produced by some sort of trauma, such as physical or emotional, both causing muscles to tense up, such as when we clinic our jaws because of some emotion.

Although tinnitus seems to have many causes, I find trigger point relief reduces mine to zero for a couple of days. I can't find the causes that reproduce those trigger points. It is some memory in the mind that remembers which muscles are supposed to be kept tense.

I have found such memories for many trigger points in my body, but not for the ones in my head. That is why they come back. If I could find the original memory, I could extend the silence to weeks and even eventually for ever.

Mine is also like yours, a high pitch white noise. And it is amazing when it goes quiet for a day or two. The problem is that finding and releasing the trigger points is time consuming, and as far as have experienced with others, they have to be self administered.

rosemary99 · ‎03-28-2021

Thank you so much for your input. Very interesting. I am following "Otonomy 313" - they are doing trials. I keep hoping for some breakthrough.

MonicaF720641 · ‎02-15-2021

I have been suffering from tinnitus for a few years in both ears.

CarryAnne · ‎10-08-2020

The new 5G wireless technology involves millimeter waves (extremely high frequencies) producing photons of much greater energy than even 4G and WiFi. Allowing this technology to be used without proving its safety is reckless in the extreme, as the millimeter waves are known to have a profound effect on all parts of the human body.

There is more tinnitus than ever and it's going to get worse. EMF scientists have petitioned the UN and WHO to call for a stop to the proliferation of wireless technology which although we can't consciously hear it makes sounds that can damage ears as well as interfere with cardiac rhythms, affect brain chemicals & hormones and even damage DNA (think birth defects & cancer).

U.N. Environment Programme Urged to Protect Nature and
Humankind from Electromagnetic Fields (EMF): 4G/5G antenna densification is escalating health risks - a global crisis

DebraR301002 · ‎05-24-2021

What can WE as citizens do about this?? I am a tinnitus sufferer for years

t827717m · ‎05-25-2021

My audiologist ordered special hearings aids that make a different level white noise and they have had great response to the use of them. Of course at night is going to be difficult for me since then audiologist ordered me as rechargeable so I am not putting new batteries in daily. I won't miss the newscaster monotone voices in heat nor will I miss the his is that even though I know its not real it try to lake words to match the tempo and rhythm

sb84035959 · ‎10-07-2020

I have had tinnitus for several years. I have to sleep with a fan to drown out the ringing. Sometimes when it gets really bad, my doctor gives me a prescription to help.

WebWiseWoman · ‎10-07-2020

@sb84035959 wrote:
I have had tinnitus for several years. I have to sleep with a fan to drown out the ringing. Sometimes when it gets really bad, my doctor gives me a prescription to help.

Hi, @sb84035959 !

I suffered tinnitus for 2 decades at least. What is your doctor prescribing? Is it for tinnitus or to sleep?

Thanks in advance!

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rosemary99 · ‎10-08-2020

My doctor gave me a prescription that helps me sleep thru the noise of tinnitus. I am following (otonomy 313). It is a company in trials for tinnitus. First part of trial was successful. What a miracle that would be to have quiet.

janicep743287 · ‎09-28-2020

I have tinnitus really had, especially in my left ear.

janicep743287 · ‎09-28-2020

I do

CarmenT628021 · ‎08-02-2020

Yes I do and for a very long time.

b725509m · ‎06-27-2020

I have had tinnitus for at least 2 years. I am fortunate to not let it bother me too much. When trying to sleep I make myself believe that it's just the noise of quietness (if that makes sense). Every now and then a single high pitch will interfere with the regular ringing, but it subsides within a few seconds. I'm not sure how this happened, but I have come to the realization that it's not going to go away so I just learn to live with it. I don't think I have any significant hearing loss so I just "keep it movin'" and continue with my life with tinnitus as part of it.. However, if there ever becomes a cure, I will be among the first in line (if it's not too expensive).

b725509m · ‎05-11-2021

Yay! It's not just me. I feel exactly the same way and have had tinnitus for about the same amount of time. Your symptoms, experience, and opionion are the same as mine--especially if there is a cure. I'm retired, but I'll try to find a job to pay for it if I have to😊.

rosemary99 · ‎06-27-2020

I am watching Otonomy 313 - it is in trials for tinnitus and just completed first half. Company will have more news in July. Hopefully they will find a cure. It took me 1 1/2 years and therapy to learn to live with it. also have meds for nighttime sleep.