Do you or anyone you know suffer from tinnitus?

[AARPTeri]

Do you or anyone you know suffer from tinnitus?  What is your experience, discuss with others here!

[mc37731857]

Does not seem to allow new comments - but I have tinnitus - bad - for over 10 years as a result of being hit in the head at close range by a golf ball.  The hideous noises I heard for a month or 2 after that were unreal - like machines, robots, jackhammers - when that finally subsided - just your normal ringing, hissing noises - it gets worse as the day progresses and sometimes drives me nuts but for the most part, have just learned to live with it. Also on allergy days, I think it is louder.   The doctor has no answers.  I am a singer so I used to get it occasionally after gigs - but THIS is for life now.  I tried the OTC things - useless.  I really wish modern science could find relief for all of us.  Take care peeps!

[rosemary99]

I know it is tough living with tinnitus. I have learned to live with it by trying to keep busy. I make sure to take my vitamin in the morning and get lots of sleep. I have been following the trial of OTO 313. They are in the 2nd half of trial. Hopefully they will find a remedy. You can go to the web site OTO 313.

[70sClassic]

Please keep me in mind if you read something new. I haven't been keeping up with the trials since personally giving  my name & number to a research person at PENTA about 2 months ago. Basically begging her not to forget about me since I didn't qualify for the trials. 🫤

[JackJ667995]

I've recognized my tinnitus only a few short years ago. I experience a hissing noise most of the time. when In quiet environments or when attempting sleep it changes to a chirping sound similar to numerous birds just inside my bedroom.

[aruzinsky]

Does anyone have tinnitus that sounds like white noise?

[Anitasmolik]

Yes, my tinnitus sounds like white noise, but it didn't when I first got the symptoms of Meniere's over 30 years ago. Then, I sometimes had tinnitus that sounded like a siren that would keep me awake all night! Going on a low sodium diet, and limiting or completely avoiding  caffeine and alcohol, plus getting hearing aids, helped to decrease my tinnitus. 

[GailL1]

WORTH THE READ - up-to-date 

NIH:  National Institute on Deafness and other Communication Disorders:  TINNITUS

On the right side of the page there are news release links on research and any developments.

Find a cure for it and you will be. . . .  RICH . . . RICH . . . . RICH !!

Sometimes I would just settle for some relief !  

[70sClassic]

Gail I have adopted the Roseanne Roseannadanna way of thinking as much as I can. 

[WalterR3231]

Hello. Thanks for the info. I will read this.  I have mentioned to others that I fond downloading free white noise apps to my ipad and listening to it at bedtime seems to help me a lot. The pink noise really works best for me. There are many of these "maskers" that seem to help folks. Staying busy during the day also seems to help by distracting me. Anyway, good luck with this and if you do find a ure of hear of one, let the rest of us know as well. Wakter R

[GailL1]

Yep, I have used white noise for years - it nothing else it keeps your mind off of the orchestra.

On a lighter note - I bought a pair of earrings from an artist - there are silver strands of various elongated shapes hanging down from the main body.  When you move, they touch each other and give off a sound like wind chimes but very light - they actually act like white noise while I am out and about.  

[pops0926]

I have had tinnitus for over 45 years. I have, at times, really suffered as the noise is very loud and NEVER stops. One thing I do to alleviate the noise is listening to music. I am 65 now and it seems to get worse as I age. Not only do I have the ringing, but I have also recently started noticing a noise as if I was standing under multiple power lines (hissing). I have learned to live with it but it still bothers me a lot. I also wear hearing aids. 

[70sClassic]

😞

[PJ1129]

I've had Tinnitus since March of 2008. In April 2017, I experienced SHLD-"Sudden Hearing Loss Disorder" One moment I experienced a loud tone in my right ear, then it was as if my ear was stopped up. After seeking help, there was nothing that made a difference. I too have hearing aids that can produce white noise. Sometimes it helps, sometimes not.  To help with sleep, I've been taking Lorazepam (Ativan) an antianxiety medication related to Valium. It helps me sleep. I'm open to trying anything.

[WalterR3231]

Hello. Just read your concerns about Tinnitus. Since you have had Tinnitus longer than I, I am certain you probably are more versed in this than I.  But here is my two cents on how I am trying to deal with this, perhaps there is something you can use here I hope. I recently acquired Tinnitus 8 days (Apr 8, 2021) after my second Pfizer Vaccine Mar 30, 2021 I understand others have developed Tinnitus from the Vaccine as well.  So I am new to Tinnitus.   I did submit a VARES report to CDC and notified our local Health Department. They will have links for specific Tinnitus information.  The main things I found that helps me and is by no means a cure is:  Stay calm, Keep busy if you can. The White noise seems to be a big help especially the Pink noise for me. I downloaded a variety of free white noise sounds to my IPAD and set it near my pillow at night, this seems to over ride the internal noise we hear and helps me relax.  My audiologist says there is another free download of White noises that can be mixed and tailored specifically for everyone. Audiologists can also do this as well. I know the hearing aids with maskers (that have White noise built in) may helps some folks, but I do not think you can wear them at night and they can be costly and may not work.  I do take Lipo- flavonoids that my doctor seems to think it may just be a placebo or that it may or may not work. It is mostly B vitamins with their secret mixture. I seem to think it helps me a bit.  I am on my third bottle since April-can be pricey. You can get these OTC at Walgreens or Walmart or Amazon. My doctor prescribed  Hydroxyzine for me just one at bed time.  This helps me stay calm and get some sleep. I also leave our overhead fan on. I am an old Vet not a doctor but I would run your meds by your doctor. I have read that some anti depressants and anti anxiety med may cause and or make Tinnitus worse.  It is important to run this by your doctor. My ENT doctor said there was nothing fixable for me and turned me over to an audiologist, and he would see me in one year. Not much help there. There is a National Tinnitus Group you can find on line. Finally, a build up of  Ear wax on the ear drums can cause this problem as well.  My doctors cleaned the right ear and the noise actually stopped. He did not find wax on the left ear so he did nothing there and that is where the noise I hear now is mostly. I have also found the age can cause Tinnitus in which the ear bones Maleus, Incus, Stapes  stiffen and can cause this problems  In addition TMJ problems can also cause this. Sometime I use  ice or a heating pad over my ears and jaw and this seems to help a bit for me.  I have read that the auditory complex is integrated into the Temporal Lobe of the brain-so is this a brain problem? I need my doctor to clarify this for me. There are great articles on line . I specifically like Mayo Clinic information.   Tinnitus is a terrible problem and it is easier said than done but stay CALM and positive and follow your doctors directions. I just do not believe there is a cure yet but hopefully soon.  Hope we all get well soon.  Walter R

[CarryAnne]

As of October 2021, nearly 13,000 people have reported tinnitus (ringing in ear) as an adverse reaction to the COVID-19 vaccine, according to the Vaccine Adverse Event Reporting System (VAERS). However, we know that only between  one and ten percent of vaccine injuries are reported to VAERS, so tinnitus is likely affecting between 130,000 and over a million people, many of whom will not make the connection or consider it a coincidence. It isn't. Teh CDC, FDA, and NIH, along with CNN and other major news networks, boycotted Sen. Ron Johnson's panel discussion on Nov. 2, 2021 that included testimonies from scientists, doctors, and victims of Covid vaccine injuries. It's easier to not listen than admit you made a mistake.   

Trying to shame people into not speaking about their experiences or punishing them for doing so is bullying behavior that guarantees more people will be injured. If you can't spare the two hours to listen to that hearing, listen to the testimony of the recent widow of Geoffrey Young about her reaction to the pro-vaccine bullying in light of the the death of her 45 year old FBI special agent who immediately sickened and died in her bed hours after receiving the Pfizer vaccine. 

Tinnitus: https://fpphysicaltherapy.com/covid-vaccine-tinnitus-ringing-ear-tinnitus/

and 

850k reports in VAERS: https://childrenshealthdefense.org/defender/vaers-cdc-adverse-events-deaths-covid-vaccines/

[WebWiseWoman]

Shame! There is NO EVIDENCE any of the COVID vaccines lead to tinnitus; your misinformation will draw attention away from a very important issue for we 70s-80s gen; many of us suffer tinnitus; and as much as we'd like to blame it on rock concerts 😉 I remember both my grandmothers saying they heard cicadas or crickets all the time. This needs research and treatment; you've got a gen on headphones; what happens when they reach my age and there's nothing to hear but insects?

#StaySafe

[CarryAnne]

"Six volunteers in J&J’s Phase 3 trial for its COVID-19 vaccine complained of tinnitus. FDA, however, concluded there was insufficient evidence to link the issue to the vaccine." However, there are several hundred reports in VAERS of tinnitus beginning within days or hours of getting the Covid vaccine. It may be a minority symptom, and certainly doesn't affect everyone this way, but denying it is real or that the evidence is insufficient isn't to anyone's benefit.  

I suggest you visit Childrens Health Defense dot org for the most comprehensive reporting of neuroinflammatory and other conditions reported after vaccination. I like the idea of a magic potion solution as well as the next person, but when we see such serious evidence of harm including heart attacks in teen agers, then I suggest that we really have to think twice about how decisions are being made, both in our own lives and on a national level. 

https://www.drugdiscoverytrends.com/researcher-neuroinflammation-may-be-behind-tinnitus-reports-in-s...

[pc19310]

You say there's no proof that the vaccine causes tinnitus?  Well, apparently there is also no proof that it doesn't.

[JanieF501684]

I have had tinnitus for about 15 or more years now.  I thought for many years that maybe I had a bad habit of not paying close enough attention to what people were saying, because I just couldn’t seem to hear what a lot of people were saying, but then I started having major BPP vertigo & in the process of testing found out that I had a significant hearing loss as well as a balance issue on top of the vertigo.  I have no way of knowing for sure what caused them, but 1) a large portion of my dads family are either deaf or extremely hard of hearing, 2) I know that I had major falling issues as a young child, 3) I worked for a major airline dealing with aircraft engines, & 4) I was hit by my parents on or by my ears as punishment as a child, so any or all of those may play a part in my issues.  The tinnitus has gotten worse over the last couple years to where I have a difficult time being able to fall asleep at night.  I do have hearing aids & have had for about 3-1/2 years now, which did help for a while, but has become worse since I got them.  I am interested in the person that said magnesium supplements helped them, because I just recently started taking a 400 mg supplement myself for muscle spasms that are not caused by lack of potassium or electrolytes.  It will be interesting to see if it helps my tinnitus.  Thanks for everyone sharing their situation.

[70sClassic]

😞 

I take magnesium & vit B every day for supposed to help not get a migraine. I notice no difference  in tinnitus .

mine isn’t genetic no one had it in my family that I know of.

I love rock & went to some concerts back in the day but not enough to account for it 

[k955617m]

I had severe Mereirs disease for more then 20 years. The side effects of that was tinnitus. Nothing really help the menieres. After about 15 years of near debilitating vertigo, I read a study by the Mayo Clinic about research into the affect of Magnesium on Meniers. After a regiment of Magnesium (400 mg) and a diuretic for about 2 years the Meniers essentially went into remission (except for an  de annual flair up). However, i still have the tinnitus because Meniers trashed my inner ear.

[70sClassic]

:-(.   Bummer. I too am taking magnesium since last seeing ENT ‘specialist’.  Idk. I hope & pray no more Menieres attack but who knows.  Good luck to ya. 

[aruzinsky]

---

@JanieF501684 wrote:

  I am interested in the person that said magnesium supplements helped them, because I just recently started taking a 400 mg supplement myself for muscle spasms that are not caused by lack of potassium or electrolytes.  It will be interesting to see if it helps my tinnitus. 

---

I took 400 mg/day for a reoccurring charley horse in my right calf.  It stopped the charley horse but did nothing for my tinnitus.  During my next blood tests I paid $20 extra to measure blood magnesium because apparently my Medicare Advantage Plan doesn't cover it.  Remarkably, my blood sodium dropped below normal so I suggest that you have yours checked.

 

So, I changed to 200 mg/day of magnesium.

[CarryAnne]

I hear that tinnitus is a side effect of the Covid vaccine, which also worsens the ringing for those already suffering with the condition. Has anyone had this experience? 

American Tinnitus Association: https://www.ata.org/tinnitus-and-coronavirus 

Tinnitus Talk Support: https://www.tinnitustalk.com/threads/i-now-have-tinnitus-after-receiving-the-pfizer-covid-19-vaccine...

[WebWiseWoman]

NO! As far as my experience, COVID has not impacted my tinnitus, positive or negtive (except when I was completely gone in bed with no ability to move; then I heard nothing).

#StaySafe

[UpperHandsPiano]

I have had tinnitus for many years. It did not worsen after getting the vaccines, and I had the Pfizer vaccines.

[rhabba]

I had never had this problem before, but began suffering from tinnitus about 6 hours after receiving first dose of Moderna COVID-19 Vaccination.   It has been constant since that day.  At about four-and-a-half months the "volume" went up slightly and now after 5 months it has increased again.  I did have the second dose at 1 month - but was afraid of additional trouble at that time.  There was no change immediately following second dose.  I can't afford to keep going to audiologists and ENTs or buying hearing aids just to get more noise.  This is really starting to degrade QOL!  I cannot concentrate - so I make mistakes and take longer to complete tasks at home and work.  For the first time in my life (I am 57) I have trouble both falling asleep and staying asleep.  I don't believe there is a cure or useful symptom reliever at this time.  I do believe it is a "brain thing" rather than an "ear thing", and as such should be reversible if they would throw as much time, effort and money into researching it as they did the vaccines... 

[CarryAnne]

As of October 2021, nearly 13,000 people have reported tinnitus (ringing in ear) as an adverse reaction to the COVID-19 vaccine, according to the Vaccine Adverse Event Reporting System (VAERS). However, we know that only between  one and ten percent of vaccine injuries are reported to VAERS, so tinnitus is likely affecting between 130,000 and over a million people, many of whom will not make the connection or consider it a coincidence. It isn't. Teh CDC, FDA, and NIH, along with CNN and other major news networks, boycotted Sen. Ron Johnson's panel discussion on Nov. 2, 2021 that included testimonies from scientists, doctors, and victims of Covid vaccine injuries. It's easier to not listen than admit you made a mistake.   

Trying to shame people into not speaking about their experiences or punishing them for doing so is bullying behavior that guarantees more people will be injured. If you can't spare the two hours to listen to that hearing, listen to the testimony of the recent widow of Geoffrey Young about her reaction to the pro-vaccine bullying in light of the the death of her 45 year old FBI special agent who immediately sickened and died in her bed hours after receiving the Pfizer vaccine. 

Tinnitus: https://fpphysicaltherapy.com/covid-vaccine-tinnitus-ringing-ear-tinnitus/

and 

850k reports in VAERS:  https://childrenshealthdefense.org/defender/vaers-cdc-adverse-events-deaths-covid-vaccines/

[rosemary99]

There are a few trials going on for a cure. If you look up "Otonomy 313" they are on the next phase of trials. Wouldn't that be some miracle? This is my 3rd year with tinnitus and am in cognitive behavior therapy. I was even in the hospital when it started after not sleeping for almost 3 weeks. Had a complete meltdown. So with medication for sleep it was much easier to learn to live with it. 

I find if I sleep for 8 to 9 hrs. it isn't real loud and even quiet days. And anti-depressant. It all helps. Good luck.

[WalterR3231]

Hello Just read your Tinnitus inputs.  I never had Tinnitus either.  However, 8 days after the second Pfizer Vaccine on Mar 30 is when I developed Tinnitus. I hope you submitted a Vares report to CDC. I did.  However a lot of people have not and this skews the side effects reports. Thus, CDC is claiming that this is not a side effect.  My ENT DR says you a;so have a loss of hearing, which I never had  as well and I will turn you over to the audiologist and then see you in a year. This is "not fixable" my doctor said.  My tinnitus is not constant-pretty close though. I am trying like so many of us to cope with the high pinging sounds.  Things that help me:  I down loaded white noise apps to my ipad (the pink noise works best for me) and I set it near my head at night and this helps me get to sleep.  Staying busy really helps by taking your mind off it. Also, I find Lipoflavinoids seem to help. My PCP said yo have a 50 50 chance that it will work. and my ENT said it may just serve as a placebo. It seems to be mostly B vitamins with their secret concoction.  It does state to run it by your doctor though to see if it is ok for you.   Overall, I think it helps me.  I am taking about 1-2 a day down from 4/day. My calls and emails to the local County Health department and CDC remain fruitless.  They are of no help. I find them to be no more than an answering the phone service with a lot of forwarding of my calls. Many of my emails to them remain unanswered. I have read that many people have developed Tinnitus after receiving  the Vaccine, but I suspect that the numbers of us are not significant for the CDC to help us. Who the heck is running these incompetent organizations?  There is a problem and something needs to be done to help us. Why isn't this really being looked at. The statement "it isn't fixable" does not lead us to any hope now does it. How about what is being done and by whom to help us would give us a little hop.   CDC should be all over this. Anyway, hope you get well soon along with all our other Tinnitus Victims. Walter R