Reply
Community Manager
Community Manager

Do you or anyone you know suffer from tinnitus?

Do you or anyone you know suffer from tinnitus?  What is your experience, discuss with others here!

AARPTeri
74,254 Views
175
Report
Conversationalist

Obviously, there are many causes for tinnitus, and sadly no universal cure. However, the widespread emergence of tinnitus as an adverse effect of the Covid vaccine is getting mainstream press: https://www.abc15.com/news/local-news/investigations/patients-urge-cdc-to-recognize-ringing-in-ears-... 

0 Kudos
1,097 Views
0
Report
Conversationalist

This isn't actually the first scientific study finding harm from wireless radiation in general and 5G in particular, but it is more robust and equates the EHS syndrome with the microwave illness which has been known to affect radiomen since at least WWII. This 2022 item specifically mentions tinnitus in a case study of a 63- and 62-years-old couple who were exposed to 5G from antennae installed on the roof of their apartment apartment building in November 2021

Article: https://childrenshealthdefense.org/defender/5g-radiation-microwave-syndrome-symptoms/ 

 

StudyMiller AB, Sears ME, Morgan LL, Davis DL, Hardell L, Oremus M, Soskolne CL. Risks to Health and Well-Being From Radio-Frequency Radiation Emitted by Cell Phones and Other Wirel.... Front Public Health. 2019 Aug 13;7:223. doi: 10.3389/fpubh.2019.00223. PMID: 31457001; PMCID: PMC6701402.

0 Kudos
3,684 Views
0
Report
Conversationalist

Vaccine Researcher Who Developed Tinnitus After COVID Shot Calls for Further Study

— Gregory Poland, MD, advocates both vaccination and better understanding of possible side effect

by Jennifer Henderson, Enterprise & Investigative Writer
MedPage Today,
 March 9, 2022

 

Gregory Poland, MD, director of the Mayo Clinic's Vaccine Research Group in Rochester, Minnesota, remains a steadfast vaccination advocate -- even though he developed tinnitus soon after receiving his second dose of COVID vaccine.

 

A little more than a year ago, Poland was driving back from the hospital after receiving his second shot when he nearly veered out of his lane.

 

"It was like someone suddenly blew a dog whistle in my ear," Poland told MedPage Today. "It has been pretty much unrelenting."

 

Since then, Poland said he has been experiencing what he describes as life-altering tinnitus, or ringing in the ear. It occurs in both ears, but is worse in the left than in the right...

https://www.medpagetoday.com/special-reports/exclusives/97592 

 

IMHO: Dr. Poland continued support of the vax is based on obstinacy and hubris  rather than cost:benefit or honest risk assessment.  

0 Kudos
3,729 Views
0
Report
Contributor

I realized I had tinnitus in my 8th grade health class.  My ears have been ringing non-stop since then, and I am now 69.  I just got used to it and don't normally notice it unless I think about it, and it's right there.

You might try some of the binaural beats thru headphones.

https://www.binauralbeatsmeditation.com/ has some specific tracks for tinnitus: TinnitusRelief.mp3 (30 minutes) and a one-hour version.

Another one is MisophoniaRelief.mp3, both 30 minutes and one hour.

When I am in a quiet time and the tinnitus is present, I found these and many other of these are helpful.  There are several for nap and deep sleep, and they can put you to sleep in spite of the tinnitus

I have tried OTC drops and such, and I've never found anything taken does any good. Oh, well.

Best of luck on this.

Regular Contributor

Thank you so much for your informative reply. 
I will ck them out.  I also have hyprercusis & pretty much deaf in right ear. So it’s a weird combination. Lately I got the idea to find an ear plug that allows me to control how loud I hear because as of now I can’t go to theatre I tried & had to leave. Yes the tinnitus is there in the background too. Thankfully does not affect my sleep. I’m always healthy in my dreams. I use a little Valium on occasion it sort of helps maybe. The weather is an obvious trigger for me just haven’t figured out how to control that. I get a day or 2 without tinnitus esp after a maxed out day of extreme loudness. 
thank you again. 

0 Kudos
4,306 Views
0
Report
Newbie

I’ve had tinnitus my whole life. But now that I’m in my 60s it is getting worse. The doctor told me it is the brain‘s way of filling in the space of pieces of noise it misses at certain frequencies. I’m very frustrated by it. Sometimes it wakes me up at night. Mostly I do my best to ignore it. At night I use brown noise. White noise is too high. I wish they could come up with a cure for that horrible ringing and cricket sounds. 

0 Kudos
6,915 Views
6
Report

I completely understand, I have had it most of my life and I am 57 years old and it seems to be getting worse. Wish they would find a cure, it can drive you crazy if you pay attention to it. Prayers 🙏🙏

0 Kudos
1,464 Views
3
Report
Regular Contributor

Please check out OTO 313. Trials going on-2nd phase.

0 Kudos
1,445 Views
2
Report
Contributor

What is OTO 313 trials? I have nerve damage and ringing in left ear

 

0 Kudos
171 Views
1
Report
Regular Contributor

OTO 313 trials-Otonomy 313 is the website. It is a company working on a cure for tinnitus and are doing trials right now. Have already done the 1st phase. What a wonderful cure this would be.

0
Kudos
19409
Views
0 Kudos
154 Views
0
Report
Conversationalist

In my experience, people in general and doctors in particular make things up. I realized this rather young. 

STORY: When I was a parochial school girl, I got sick a lot, mostly bronchitis which continued until my dad stopped smoking when I was about 11. I must have been around 7 when I asked my doctor (who made house calls back then), why did my eczema always go away when I got sick and come back when I got better. He replied, "Maybe God doesn't want you to suffer too much." I remember he and my mother smiled smugly at each other. I didn't say anything but I remember thinking, "Just because I'm a kid, it doesn't mean I'm stupid." 

 

It took me to age 28 to realize that I was allergic to both wheat and dairy. I ate bread and milk at every meal, except when I was ill. Then it was water, apple juice, and clear soups. 

0 Kudos
3,675 Views
0
Report
Regular Contributor

I’ve read the same thing about the brains way of making up for loss of hearing frequencies. I believe there is going to be a cure very soon after the trials of OTO313 get through 

I suffer from tinnitus as well. Sometimes it takes me close to a hour to fall asleep. I’ve started taking Lipo Flavonoid Plus for Ear Ringing. Hoping it will provide some relief. At least it comes with a money-back guarantee. 

0 Kudos
6,976 Views
3
Report
Contributor

Since taking Lipo Flavonoid Plus have you gotten any relief for the ear ringing?

0 Kudos
1,085 Views
1
Report
Regular Contributor

No it didn't work for me. I'm sure now that weather changes are the primary aggrevater.  Nothing helps at all when it's at that level . Poor sleep comes in as a tie.  On those worse days I don't even leave the house. Try to stay as calm as I can. I've found that if I can hold on thru the worse day the next day will be better. definitely a weather change of some kind coming on also windy days bad. Tried yet again to use a hearing aid on the last worse day it might have helped. Its old battery type. I'm going to buy a rechargeable meaning yet another appt with an audiologist to get current levels. Then find a hearing aid provider that takes my insurance to save $. Just been putting it off .  It's a real time consuming process. But the lost days due to tinnitus are no good.  Thank you for the message. If you know of Anything please pass it on.  

0 Kudos
1,061 Views
0
Report
Contributor

I have had tinnitus for years. Nighttime is the hardest, but I am grateful that I do sleep. Did you have any luck with Lipo Flavonoid? It did nothing for me and I never did receive my refund. Hope you had better luck. I am going to see an ENT & will check out the OTO313 trial. I empathize with everyone who suffers with it.

Contributor

Does not seem to allow new comments - but I have tinnitus - bad - for over 10 years as a result of being hit in the head at close range by a golf ball.  The hideous noises I heard for a month or 2 after that were unreal - like machines, robots, jackhammers - when that finally subsided - just your normal ringing, hissing noises - it gets worse as the day progresses and sometimes drives me nuts but for the most part, have just learned to live with it. Also on allergy days, I think it is louder.   The doctor has no answers.  I am a singer so I used to get it occasionally after gigs - but THIS is for life now.  I tried the OTC things - useless.  I really wish modern science could find relief for all of us.  Take care peeps!

 

Regular Contributor

I know it is tough living with tinnitus. I have learned to live with it by trying to keep busy. I make sure to take my vitamin in the morning and get lots of sleep. I have been following the trial of OTO 313. They are in the 2nd half of trial. Hopefully they will find a remedy. You can go to the web site OTO 313.

Regular Contributor

Please keep me in mind if you read something new. I haven't been keeping up with the trials since personally giving  my name & number to a research person at PENTA about 2 months ago. Basically begging her not to forget about me since I didn't qualify for the trials. 🫤

0 Kudos
1,059 Views
0
Report
Newbie

I've recognized my tinnitus only a few short years ago. I experience a hissing noise most of the time. when In quiet environments or when attempting sleep it changes to a chirping sound similar to numerous birds just inside my bedroom.

0 Kudos
8,916 Views
0
Report
Recognized Social Butterfly

Does anyone have tinnitus that sounds like white noise?

11,388 Views
1
Report
Periodic Contributor

Yes, my tinnitus sounds like white noise, but it didn't when I first got the symptoms of Meniere's over 30 years ago. Then, I sometimes had tinnitus that sounded like a siren that would keep me awake all night! Going on a low sodium diet, and limiting or completely avoiding  caffeine and alcohol, plus getting hearing aids, helped to decrease my tinnitus. 

11,302 Views
0
Report
Honored Social Butterfly

WORTH THE READ - up-to-date 

NIH:  National Institute on Deafness and other Communication Disorders:  TINNITUS

 

On the right side of the page there are news release links on research and any developments.

 

Find a cure for it and you will be. . . .  RICH . . . RICH . . . . RICH !!

Sometimes I would just settle for some relief !  

It's Always Something . . . . Roseanna Roseannadanna
11,473 Views
3
Report
Regular Contributor

Gail I have adopted the Roseanne Roseannadanna way of thinking as much as I can. 

0 Kudos
6,863 Views
0
Report
Periodic Contributor

Hello. Thanks for the info. I will read this.  I have mentioned to others that I fond downloading free white noise apps to my ipad and listening to it at bedtime seems to help me a lot. The pink noise really works best for me. There are many of these "maskers" that seem to help folks. Staying busy during the day also seems to help by distracting me. Anyway, good luck with this and if you do find a ure of hear of one, let the rest of us know as well. Wakter R

11,421 Views
1
Report
Honored Social Butterfly

Yep, I have used white noise for years - it nothing else it keeps your mind off of the orchestra.

On a lighter note - I bought a pair of earrings from an artist - there are silver strands of various elongated shapes hanging down from the main body.  When you move, they touch each other and give off a sound like wind chimes but very light - they actually act like white noise while I am out and about.  

 

 

It's Always Something . . . . Roseanna Roseannadanna
11,316 Views
0
Report
Contributor

I have had tinnitus for over 45 years. I have, at times, really suffered as the noise is very loud and NEVER stops. One thing I do to alleviate the noise is listening to music. I am 65 now and it seems to get worse as I age. Not only do I have the ringing, but I have also recently started noticing a noise as if I was standing under multiple power lines (hissing). I have learned to live with it but it still bothers me a lot. I also wear hearing aids. 

Regular Contributor

😞

0 Kudos
5,008 Views
0
Report
Contributor

I've had Tinnitus since March of 2008. In April 2017, I experienced SHLD-"Sudden Hearing Loss Disorder" One moment I experienced a loud tone in my right ear, then it was as if my ear was stopped up. After seeking help, there was nothing that made a difference. I too have hearing aids that can produce white noise. Sometimes it helps, sometimes not.  To help with sleep, I've been taking Lorazepam (Ativan) an antianxiety medication related to Valium. It helps me sleep. I'm open to trying anything.

 

16,063 Views
5
Report
cancel
Showing results for 
Show  only  | Search instead for 
Did you mean: 
Users
Need to Know
More From AARP