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Do you or anyone you know suffer from tinnitus?

Do you or anyone you know suffer from tinnitus?  What is your experience, discuss with others here!

AARPTeri
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I have had tinnitus for over 45 years. I have, at times, really suffered as the noise is very loud and NEVER stops. One thing I do to alleviate the noise is listening to music. I am 65 now and it seems to get worse as I age. Not only do I have the ringing, but I have also recently started noticing a noise as if I was standing under multiple power lines (hissing). I have learned to live with it but it still bothers me a lot. I also wear hearing aids. 

Contributor

I've had Tinnitus since March of 2008. In April 2017, I experienced SHLD-"Sudden Hearing Loss Disorder" One moment I experienced a loud tone in my right ear, then it was as if my ear was stopped up. After seeking help, there was nothing that made a difference. I too have hearing aids that can produce white noise. Sometimes it helps, sometimes not.  To help with sleep, I've been taking Lorazepam (Ativan) an antianxiety medication related to Valium. It helps me sleep. I'm open to trying anything.

 

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Periodic Contributor

Hello. Just read your concerns about Tinnitus. Since you have had Tinnitus longer than I, I am certain you probably are more versed in this than I.  But here is my two cents on how I am trying to deal with this, perhaps there is something you can use here I hope. I recently acquired Tinnitus 8 days (Apr 8, 2021) after my second Pfizer Vaccine Mar 30, 2021 I understand others have developed Tinnitus from the Vaccine as well.  So I am new to Tinnitus.   I did submit a VARES report to CDC and notified our local Health Department. They will have links for specific Tinnitus information.  The main things I found that helps me and is by no means a cure is:  Stay calm, Keep busy if you can. The White noise seems to be a big help especially the Pink noise for me. I downloaded a variety of free white noise sounds to my IPAD and set it near my pillow at night, this seems to over ride the internal noise we hear and helps me relax.  My audiologist says there is another free download of White noises that can be mixed and tailored specifically for everyone. Audiologists can also do this as well. I know the hearing aids with maskers (that have White noise built in) may helps some folks, but I do not think you can wear them at night and they can be costly and may not work.  I do take Lipo- flavonoids that my doctor seems to think it may just be a placebo or that it may or may not work. It is mostly B vitamins with their secret mixture. I seem to think it helps me a bit.  I am on my third bottle since April-can be pricey. You can get these OTC at Walgreens or Walmart or Amazon. My doctor prescribed  Hydroxyzine for me just one at bed time.  This helps me stay calm and get some sleep. I also leave our overhead fan on. I am an old Vet not a doctor but I would run your meds by your doctor. I have read that some anti depressants and anti anxiety med may cause and or make Tinnitus worse.  It is important to run this by your doctor. My ENT doctor said there was nothing fixable for me and turned me over to an audiologist, and he would see me in one year. Not much help there. There is a National Tinnitus Group you can find on line. Finally, a build up of  Ear wax on the ear drums can cause this problem as well.  My doctors cleaned the right ear and the noise actually stopped. He did not find wax on the left ear so he did nothing there and that is where the noise I hear now is mostly. I have also found the age can cause Tinnitus in which the ear bones Maleus, Incus, Stapes  stiffen and can cause this problems  In addition TMJ problems can also cause this. Sometime I use  ice or a heating pad over my ears and jaw and this seems to help a bit for me.  I have read that the auditory complex is integrated into the Temporal Lobe of the brain-so is this a brain problem? I need my doctor to clarify this for me. There are great articles on line . I specifically like Mayo Clinic information.   Tinnitus is a terrible problem and it is easier said than done but stay CALM and positive and follow your doctors directions. I just do not believe there is a cure yet but hopefully soon.  Hope we all get well soon.  Walter R

Social Butterfly

Shame! There is NO EVIDENCE any of the COVID vaccines lead to tinnitus; your misinformation will draw attention away from a very important issue for we 70s-80s gen; many of us suffer tinnitus; and as much as we'd like to blame it on rock concerts 😉 I remember both my grandmothers saying they heard cicadas or crickets all the time. This needs research and treatment; you've got a gen on headphones; what happens when they reach my age and there's nothing to hear but insects?

 

#StaySafe


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Phil Harris, actor and showman, to John Fogerty of CCR: “If I’d known I’d live this long, I’d have taken better care of myself.”
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"Six volunteers in J&J’s Phase 3 trial for its COVID-19 vaccine complained of tinnitus. FDA, however, concluded there was insufficient evidence to link the issue to the vaccine." However, there are several hundred reports in VAERS of tinnitus beginning within days or hours of getting the Covid vaccine. It may be a minority symptom, and certainly doesn't affect everyone this way, but denying it is real or that the evidence is insufficient isn't to anyone's benefit.  

 

I suggest you visit Childrens Health Defense dot org for the most comprehensive reporting of neuroinflammatory and other conditions reported after vaccination. I like the idea of a magic potion solution as well as the next person, but when we see such serious evidence of harm including heart attacks in teen agers, then I suggest that we really have to think twice about how decisions are being made, both in our own lives and on a national level. 

 

https://www.drugdiscoverytrends.com/researcher-neuroinflammation-may-be-behind-tinnitus-reports-in-s...

 

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You say there's no proof that the vaccine causes tinnitus?  Well, apparently there is also no proof that it doesn't.

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I have had tinnitus for about 15 or more years now.  I thought for many years that maybe I had a bad habit of not paying close enough attention to what people were saying, because I just couldn’t seem to hear what a lot of people were saying, but then I started having major BPP vertigo & in the process of testing found out that I had a significant hearing loss as well as a balance issue on top of the vertigo.  I have no way of knowing for sure what caused them, but 1) a large portion of my dads family are either deaf or extremely hard of hearing, 2) I know that I had major falling issues as a young child, 3) I worked for a major airline dealing with aircraft engines, & 4) I was hit by my parents on or by my ears as punishment as a child, so any or all of those may play a part in my issues.  The tinnitus has gotten worse over the last couple years to where I have a difficult time being able to fall asleep at night.  I do have hearing aids & have had for about 3-1/2 years now, which did help for a while, but has become worse since I got them.  I am interested in the person that said magnesium supplements helped them, because I just recently started taking a 400 mg supplement myself for muscle spasms that are not caused by lack of potassium or electrolytes.  It will be interesting to see if it helps my tinnitus.  Thanks for everyone sharing their situation.

Contributor

I had severe Mereirs disease for more then 20 years. The side effects of that was tinnitus. Nothing really help the menieres. After about 15 years of near debilitating vertigo, I read a study by the Mayo Clinic about research into the affect of Magnesium on Meniers. After a regiment of Magnesium (400 mg) and a diuretic for about 2 years the Meniers essentially went into remission (except for an  de annual flair up). However, i still have the tinnitus because Meniers trashed my inner ear.

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@JanieF501684 wrote:

  I am interested in the person that said magnesium supplements helped them, because I just recently started taking a 400 mg supplement myself for muscle spasms that are not caused by lack of potassium or electrolytes.  It will be interesting to see if it helps my tinnitus. 


I took 400 mg/day for a reoccurring charley horse in my right calf.  It stopped the charley horse but did nothing for my tinnitus.  During my next blood tests I paid $20 extra to measure blood magnesium because apparently my Medicare Advantage Plan doesn't cover it.  Remarkably, my blood sodium dropped below normal so I suggest that you have yours checked.

 

Magnesium.png  SodiumChart.png

So, I changed to 200 mg/day of magnesium.

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I hear that tinnitus is a side effect of the Covid vaccine, which also worsens the ringing for those already suffering with the condition. Has anyone had this experience? 

 

American Tinnitus Association: https://www.ata.org/tinnitus-and-coronavirus 

Tinnitus Talk Support: https://www.tinnitustalk.com/threads/i-now-have-tinnitus-after-receiving-the-pfizer-covid-19-vaccine...

Social Butterfly

NO! As far as my experience, COVID has not impacted my tinnitus, positive or negtive (except when I was completely gone in bed with no ability to move; then I heard nothing).

 

#StaySafe


#VegasStrong
Phil Harris, actor and showman, to John Fogerty of CCR: “If I’d known I’d live this long, I’d have taken better care of myself.”
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I have had tinnitus for many years. It did not worsen after getting the vaccines, and I had the Pfizer vaccines.

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I had never had this problem before, but began suffering from tinnitus about 6 hours after receiving first dose of Moderna COVID-19 Vaccination.   It has been constant since that day.  At about four-and-a-half months the "volume" went up slightly and now after 5 months it has increased again.  I did have the second dose at 1 month - but was afraid of additional trouble at that time.  There was no change immediately following second dose.  I can't afford to keep going to audiologists and ENTs or buying hearing aids just to get more noise.  This is really starting to degrade QOL!  I cannot concentrate - so I make mistakes and take longer to complete tasks at home and work.  For the first time in my life (I am 57) I have trouble both falling asleep and staying asleep.  I don't believe there is a cure or useful symptom reliever at this time.  I do believe it is a "brain thing" rather than an "ear thing", and as such should be reversible if they would throw as much time, effort and money into researching it as they did the vaccines... 

Social Butterfly

I am sorry you have now experienced this issue millions have experienced for years.

 

I doubt, however, you never experienced this before. It took me years to recognize what was going on; then I knew I'd ignored the symptoms because I knew from family history there was no relief.

 

I want to challenge the medical and audiology communities to address the issue of tinnitus, please? As our population ages we need to address those issues most impacting, so to address the future generations' issues!

 

Please find a cure for tinnitus, please?

 

#StaySafe


#VegasStrong
Phil Harris, actor and showman, to John Fogerty of CCR: “If I’d known I’d live this long, I’d have taken better care of myself.”
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I have had both Pfizer shots and my tinnitus did not get worse. It will be 3 years this november. I started out with hearing aids with maskers (could set them to almost 50 different sounds) with my IPad or smart phone. Then that drove me crazy. The only thing that works for me is to keep busy. The first 2 years were awful. There is a company called "Otonomy 313" and they are on the 2nd phase of trials for a treatment for tinnitus. I really hope something can be found.

No effects from the covid vaccine.

I've had RA for 19 yrs and my tinnitus started before that. In the beginning it was only noticeable after exposure to loud noise. Ove rht years it has become louder. I've noticed it's the loudest if I'm tired.

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Hello. Just read your comment.  I had my second COVID Pfizer vaccine on Mar 30, 2021. By Apr7-8, I developed Tinnitus.  Not sure if they are related but definetly within a brief window. There was no problem with the first Vaccine.  The noise I heard was from a whoosing to a high pitch and seems to come and go-I just wish it would be gone forever.  Hearing tests showed a some hearing loss as well.  My primary doctor removed some ear wax from my rt ear and that helped alot, but the Tinnitus is still present Lt>Rt. Things that seem to help me:  Pink noise, and fan noise all white noise. I downloaded to my ipad and sleep with it by my head most nights.  My doctor prescribed Hydroxyzine which seems to help calm me and help me get to sleep a bit better. I also use a heating pad over my ear which seems more like a placebo but I will take anything if I think it may help. I also take the OTC bio-flavinoids which seem to be mostly B vitamins but I think they help a little as well. I did file a VAERS Report and notified our cities Health Department. I have hear others have also noticed the Tinnitus after the 2nd COVID Vaccine. Is Pfizer or our wonderful government doing anything to help us afflicted with this?  Finally, an audiologist told me that she uses her hearing aid with maskers (white noise) piped in to over shadow the Tinnitus noise. I believe they also have ear buds that help as well.  What a mess this is for so many of us. If I knew this was a side effect, I would not have got the vaccine.  Hope you get well soon. Walter R.

Contributor

I’ve had tinnitus for 20 years now, as a result of the antidepressant I take. It’s an unfortunate potential side effect of the medication. I have severe depression & over the years I tried other medications that were not helpful at all. When I tried the current antidepressant, it changed my life and thankfully it controls the depression symptoms very well. I would love to not have tinnitus but would have to wean off the antidepressant, which would take about 6-8 weeks, and I have no idea how long the tinnitus would take to resolve, if it even would at this point. I also don’t know how bad the depression would get once weaned off the med. Much of the time the tinnitus doesn’t “bother” me because I keep myself busy so don’t think about it. It sounds like white noise & I have no problem going to sleep. I also don’t think it affects my hearing, although I  haven’t had an audiology exam in over 10 years so that’s next on my to do list. I’m 67.

Contributor

I have also acquired tinnitus from an anti-depressant.  It is a mild medication so I decided to try going off of it and found the tinnitus was not lessened at all.  I feel it is permanent now.

Contributor

I have had Meniers for about 25 years. The side effect of that is loss of hearing and tinnitus. I had a hearing aide 10 years ago or so. But it amplified the tinnitus so after a bit of time I stopped using the hearing aide. Even with current technologies I am reticent to invest in a hearing because I am not confident it will work with the tinnitus 

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About 25 years ago, I had a brief episode of Meniers and it was one of the worst experiences in my life.  I was so dizzy that I couldn't read large lettering to dial 911.  I remember crawling on my stomach on my lawn while vomiting.  My neighbor noticed and called 911 for me.  I got a ct scan that didn't show anything abnormal.  My doctor told me that it was probably due to a viral infection.

 

This happened while I had tinnitus, which didn't change because of Meniers.

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Newbie

I had a similar episode... thought I was having a stroke ...My ENT did a VNG test and said “ i’m sure you have a problem I just can’t find out what it is”... approximately three weeks later I woke up one morning with Nightes Nightes horrible horrible experience...

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Sorry should have been tinnitus .

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I was diagnosed with Meniere's Disease in 1999. I not only had tinnitus, but dizzy spells, vertigo, and vomiting at times. I was told to keep my sodium level to 2000 mg. or less a day, and limit my caffeine and alcohol. I also got hearing aids, as I lost hearing, mostly in my left ear. Since then, my tinnitus is a lot less. If I ingest a food item with too much sodium (usually in a restaurant where I not always can limit my sodium), my tinnitus goes up, so I know that is the cause.

Contributor

The radical affects of meniers subsided about 5 years ago ( vertigo, etc) but the tinnitus got worse since then. 400mg of magnesium & a daily diuretic while keeping sodium < 1200 MG was the key to reducing the radical part of meniers 

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The hearing aids I recently got apparently have programing that does lessen the impact of my tinnitus.  My tinnitus is in the higher frequency - like being in a jet aircraft - so there is a boost from the hearing aid.

The one thing I wish I could figure out is what triggers my tinnitus to get louder.  Sometimes it recedes into the background to the point I don't notice it, but other times is is so loud it makes concentrating difficult. 

I'm lucky that the frequency of the sound is right where our "white noise" generator's "surf" sounds" are so that I don't have too much of an impact on my sleep.

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I have had intermittent luck with trigger point massage around my neck, ear, jaws, temples, and generally some seemingly irrelevant muscles of the head.

 

Trigger points are produced by some sort of trauma, such as physical or emotional, both causing muscles to tense up, such as when we clinic our jaws because of some emotion.

 

Although tinnitus seems to have many causes, I find trigger point relief reduces mine to zero for a couple of days. I can't find the causes that reproduce those trigger points. It is some memory in the mind that remembers which muscles are supposed to be kept tense.

 

I have found such memories for many trigger points in my body, but not for the ones in my head. That is why they come back. If I could find the original memory, I could extend the silence to weeks and even eventually for ever.

 

Mine is also like yours, a high pitch white noise. And it is amazing when it goes quiet for a day or two. The problem is that finding and releasing the trigger points is time consuming, and as far as have experienced with others, they have to be self administered.

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Thank you so much for your input. Very interesting. I am following "Otonomy 313" - they are doing trials. I keep hoping for some breakthrough. 

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I have been suffering from tinnitus for a few years in both ears.

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