Do you or anyone you know suffer from tinnitus?

[AARPTeri]

Do you or anyone you know suffer from tinnitus?  What is your experience, discuss with others here!

[k955617m]

I had severe Mereirs disease for more then 20 years. The side effects of that was tinnitus. Nothing really help the menieres. After about 15 years of near debilitating vertigo, I read a study by the Mayo Clinic about research into the affect of Magnesium on Meniers. After a regiment of Magnesium (400 mg) and a diuretic for about 2 years the Meniers essentially went into remission (except for an  de annual flair up). However, i still have the tinnitus because Meniers trashed my inner ear.

[70sClassic]

:-(.   Bummer. I too am taking magnesium since last seeing ENT ‘specialist’.  Idk. I hope & pray no more Menieres attack but who knows.  Good luck to ya. 

[aruzinsky]

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@JanieF501684 wrote:

  I am interested in the person that said magnesium supplements helped them, because I just recently started taking a 400 mg supplement myself for muscle spasms that are not caused by lack of potassium or electrolytes.  It will be interesting to see if it helps my tinnitus. 

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I took 400 mg/day for a reoccurring charley horse in my right calf.  It stopped the charley horse but did nothing for my tinnitus.  During my next blood tests I paid $20 extra to measure blood magnesium because apparently my Medicare Advantage Plan doesn't cover it.  Remarkably, my blood sodium dropped below normal so I suggest that you have yours checked.

 

So, I changed to 200 mg/day of magnesium.

[CarryAnne]

I hear that tinnitus is a side effect of the Covid vaccine, which also worsens the ringing for those already suffering with the condition. Has anyone had this experience? 

American Tinnitus Association: https://www.ata.org/tinnitus-and-coronavirus 

Tinnitus Talk Support: https://www.tinnitustalk.com/threads/i-now-have-tinnitus-after-receiving-the-pfizer-covid-19-vaccine...

[WebWiseWoman]

NO! As far as my experience, COVID has not impacted my tinnitus, positive or negtive (except when I was completely gone in bed with no ability to move; then I heard nothing).

#StaySafe

[UpperHandsPiano]

I have had tinnitus for many years. It did not worsen after getting the vaccines, and I had the Pfizer vaccines.

[rhabba]

I had never had this problem before, but began suffering from tinnitus about 6 hours after receiving first dose of Moderna COVID-19 Vaccination.   It has been constant since that day.  At about four-and-a-half months the "volume" went up slightly and now after 5 months it has increased again.  I did have the second dose at 1 month - but was afraid of additional trouble at that time.  There was no change immediately following second dose.  I can't afford to keep going to audiologists and ENTs or buying hearing aids just to get more noise.  This is really starting to degrade QOL!  I cannot concentrate - so I make mistakes and take longer to complete tasks at home and work.  For the first time in my life (I am 57) I have trouble both falling asleep and staying asleep.  I don't believe there is a cure or useful symptom reliever at this time.  I do believe it is a "brain thing" rather than an "ear thing", and as such should be reversible if they would throw as much time, effort and money into researching it as they did the vaccines... 

[CarryAnne]

As of October 2021, nearly 13,000 people have reported tinnitus (ringing in ear) as an adverse reaction to the COVID-19 vaccine, according to the Vaccine Adverse Event Reporting System (VAERS). However, we know that only between  one and ten percent of vaccine injuries are reported to VAERS, so tinnitus is likely affecting between 130,000 and over a million people, many of whom will not make the connection or consider it a coincidence. It isn't. Teh CDC, FDA, and NIH, along with CNN and other major news networks, boycotted Sen. Ron Johnson's panel discussion on Nov. 2, 2021 that included testimonies from scientists, doctors, and victims of Covid vaccine injuries. It's easier to not listen than admit you made a mistake.   

Trying to shame people into not speaking about their experiences or punishing them for doing so is bullying behavior that guarantees more people will be injured. If you can't spare the two hours to listen to that hearing, listen to the testimony of the recent widow of Geoffrey Young about her reaction to the pro-vaccine bullying in light of the the death of her 45 year old FBI special agent who immediately sickened and died in her bed hours after receiving the Pfizer vaccine. 

Tinnitus: https://fpphysicaltherapy.com/covid-vaccine-tinnitus-ringing-ear-tinnitus/

and 

850k reports in VAERS:  https://childrenshealthdefense.org/defender/vaers-cdc-adverse-events-deaths-covid-vaccines/

[rosemary99]

There are a few trials going on for a cure. If you look up "Otonomy 313" they are on the next phase of trials. Wouldn't that be some miracle? This is my 3rd year with tinnitus and am in cognitive behavior therapy. I was even in the hospital when it started after not sleeping for almost 3 weeks. Had a complete meltdown. So with medication for sleep it was much easier to learn to live with it. 

I find if I sleep for 8 to 9 hrs. it isn't real loud and even quiet days. And anti-depressant. It all helps. Good luck.

[WalterR3231]

Hello Just read your Tinnitus inputs.  I never had Tinnitus either.  However, 8 days after the second Pfizer Vaccine on Mar 30 is when I developed Tinnitus. I hope you submitted a Vares report to CDC. I did.  However a lot of people have not and this skews the side effects reports. Thus, CDC is claiming that this is not a side effect.  My ENT DR says you a;so have a loss of hearing, which I never had  as well and I will turn you over to the audiologist and then see you in a year. This is "not fixable" my doctor said.  My tinnitus is not constant-pretty close though. I am trying like so many of us to cope with the high pinging sounds.  Things that help me:  I down loaded white noise apps to my ipad (the pink noise works best for me) and I set it near my head at night and this helps me get to sleep.  Staying busy really helps by taking your mind off it. Also, I find Lipoflavinoids seem to help. My PCP said yo have a 50 50 chance that it will work. and my ENT said it may just serve as a placebo. It seems to be mostly B vitamins with their secret concoction.  It does state to run it by your doctor though to see if it is ok for you.   Overall, I think it helps me.  I am taking about 1-2 a day down from 4/day. My calls and emails to the local County Health department and CDC remain fruitless.  They are of no help. I find them to be no more than an answering the phone service with a lot of forwarding of my calls. Many of my emails to them remain unanswered. I have read that many people have developed Tinnitus after receiving  the Vaccine, but I suspect that the numbers of us are not significant for the CDC to help us. Who the heck is running these incompetent organizations?  There is a problem and something needs to be done to help us. Why isn't this really being looked at. The statement "it isn't fixable" does not lead us to any hope now does it. How about what is being done and by whom to help us would give us a little hop.   CDC should be all over this. Anyway, hope you get well soon along with all our other Tinnitus Victims. Walter R

[WebWiseWoman]

I am sorry you have now experienced this issue millions have experienced for years.

I doubt, however, you never experienced this before. It took me years to recognize what was going on; then I knew I'd ignored the symptoms because I knew from family history there was no relief.

I want to challenge the medical and audiology communities to address the issue of tinnitus, please? As our population ages we need to address those issues most impacting, so to address the future generations' issues!

Please find a cure for tinnitus, please?

#StaySafe

[70sClassic]

The Aarp magazine newest issue nov 2021 an article about major progress with cancer, heart and other terrible life threatening disease

how do we write and ask for article on research on tinnitus,deafness, menieres, the unpredictability of flare ups and the effect this has on living our lives. I can't plan a trip can you?  I can't write anything in stone. No it's not life threatening as in we can die from it but it's plenty disabling 

good luck & good wishes. 

[rosemary99]

I have had both Pfizer shots and my tinnitus did not get worse. It will be 3 years this november. I started out with hearing aids with maskers (could set them to almost 50 different sounds) with my IPad or smart phone. Then that drove me crazy. The only thing that works for me is to keep busy. The first 2 years were awful. There is a company called "Otonomy 313" and they are on the 2nd phase of trials for a treatment for tinnitus. I really hope something can be found.

[lindasmargison]

No effects from the covid vaccine.

I've had RA for 19 yrs and my tinnitus started before that. In the beginning it was only noticeable after exposure to loud noise. Ove rht years it has become louder. I've noticed it's the loudest if I'm tired.

[WalterR3231]

Hello. Just read your comment.  I had my second COVID Pfizer vaccine on Mar 30, 2021. By Apr7-8, I developed Tinnitus.  Not sure if they are related but definetly within a brief window. There was no problem with the first Vaccine.  The noise I heard was from a whoosing to a high pitch and seems to come and go-I just wish it would be gone forever.  Hearing tests showed a some hearing loss as well.  My primary doctor removed some ear wax from my rt ear and that helped alot, but the Tinnitus is still present Lt>Rt. Things that seem to help me:  Pink noise, and fan noise all white noise. I downloaded to my ipad and sleep with it by my head most nights.  My doctor prescribed Hydroxyzine which seems to help calm me and help me get to sleep a bit better. I also use a heating pad over my ear which seems more like a placebo but I will take anything if I think it may help. I also take the OTC bio-flavinoids which seem to be mostly B vitamins but I think they help a little as well. I did file a VAERS Report and notified our cities Health Department. I have hear others have also noticed the Tinnitus after the 2nd COVID Vaccine. Is Pfizer or our wonderful government doing anything to help us afflicted with this?  Finally, an audiologist told me that she uses her hearing aid with maskers (white noise) piped in to over shadow the Tinnitus noise. I believe they also have ear buds that help as well.  What a mess this is for so many of us. If I knew this was a side effect, I would not have got the vaccine.  Hope you get well soon. Walter R.

[t588602d]

I’ve had tinnitus for 20 years now, as a result of the antidepressant I take. It’s an unfortunate potential side effect of the medication. I have severe depression & over the years I tried other medications that were not helpful at all. When I tried the current antidepressant, it changed my life and thankfully it controls the depression symptoms very well. I would love to not have tinnitus but would have to wean off the antidepressant, which would take about 6-8 weeks, and I have no idea how long the tinnitus would take to resolve, if it even would at this point. I also don’t know how bad the depression would get once weaned off the med. Much of the time the tinnitus doesn’t “bother” me because I keep myself busy so don’t think about it. It sounds like white noise & I have no problem going to sleep. I also don’t think it affects my hearing, although I  haven’t had an audiology exam in over 10 years so that’s next on my to do list. I’m 67.

[TerriC23642]

I have also acquired tinnitus from an anti-depressant.  It is a mild medication so I decided to try going off of it and found the tinnitus was not lessened at all.  I feel it is permanent now.

[k955617m]

I have had Meniers for about 25 years. The side effect of that is loss of hearing and tinnitus. I had a hearing aide 10 years ago or so. But it amplified the tinnitus so after a bit of time I stopped using the hearing aide. Even with current technologies I am reticent to invest in a hearing because I am not confident it will work with the tinnitus 

[aruzinsky]

About 25 years ago, I had a brief episode of Meniers and it was one of the worst experiences in my life.  I was so dizzy that I couldn't read large lettering to dial 911.  I remember crawling on my stomach on my lawn while vomiting.  My neighbor noticed and called 911 for me.  I got a ct scan that didn't show anything abnormal.  My doctor told me that it was probably due to a viral infection.

This happened while I had tinnitus, which didn't change because of Meniers.

[RobertB591664]

did you find any relief for the 911 pills?

[Phenelope77]

I had a similar episode... thought I was having a stroke ...My ENT did a VNG test and said “ i’m sure you have a problem I just can’t find out what it is”... approximately three weeks later I woke up one morning with Nightes Nightes horrible horrible experience...

[Phenelope77]

Sorry should have been tinnitus .

[Anitasmolik]

I was diagnosed with Meniere's Disease in 1999. I not only had tinnitus, but dizzy spells, vertigo, and vomiting at times. I was told to keep my sodium level to 2000 mg. or less a day, and limit my caffeine and alcohol. I also got hearing aids, as I lost hearing, mostly in my left ear. Since then, my tinnitus is a lot less. If I ingest a food item with too much sodium (usually in a restaurant where I not always can limit my sodium), my tinnitus goes up, so I know that is the cause.

[lc3507]

I keep my sodium level low and take a diuretic every day. The dizzy spells are less frequent but the tinnitus and hearing loss haven't changed.

[k955617m]

The radical affects of meniers subsided about 5 years ago ( vertigo, etc) but the tinnitus got worse since then. 400mg of magnesium & a daily diuretic while keeping sodium < 1200 MG was the key to reducing the radical part of meniers 

[MichaelB854531]

The hearing aids I recently got apparently have programing that does lessen the impact of my tinnitus.  My tinnitus is in the higher frequency - like being in a jet aircraft - so there is a boost from the hearing aid.

The one thing I wish I could figure out is what triggers my tinnitus to get louder.  Sometimes it recedes into the background to the point I don't notice it, but other times is is so loud it makes concentrating difficult. 

I'm lucky that the frequency of the sound is right where our "white noise" generator's "surf" sounds" are so that I don't have too much of an impact on my sleep.

[NaderF126695]

I have had intermittent luck with trigger point massage around my neck, ear, jaws, temples, and generally some seemingly irrelevant muscles of the head.

Trigger points are produced by some sort of trauma, such as physical or emotional, both causing muscles to tense up, such as when we clinic our jaws because of some emotion.

Although tinnitus seems to have many causes, I find trigger point relief reduces mine to zero for a couple of days. I can't find the causes that reproduce those trigger points. It is some memory in the mind that remembers which muscles are supposed to be kept tense.

I have found such memories for many trigger points in my body, but not for the ones in my head. That is why they come back. If I could find the original memory, I could extend the silence to weeks and even eventually for ever.

Mine is also like yours, a high pitch white noise. And it is amazing when it goes quiet for a day or two. The problem is that finding and releasing the trigger points is time consuming, and as far as have experienced with others, they have to be self administered.

[rosemary99]

Thank you so much for your input. Very interesting. I am following "Otonomy 313" - they are doing trials. I keep hoping for some breakthrough. 

[MonicaF720641]

I have been suffering from tinnitus for a few years in both ears.

[CarryAnne]

The new 5G wireless technology involves millimeter waves (extremely high frequencies) producing photons of much greater energy than even 4G and WiFi. Allowing this technology to be used without proving its safety is reckless in the extreme, as the millimeter waves are known to have a profound effect on all parts of the human body.

There is more tinnitus than ever and it's going to get worse. EMF scientists have petitioned the UN and WHO to call for a stop to the proliferation of wireless technology which although we can't consciously hear it makes sounds that can damage ears as well as interfere with cardiac rhythms, affect brain chemicals & hormones and even damage DNA (think birth defects & cancer). 

U.N. Environment Programme Urged to Protect Nature and
Humankind from Electromagnetic Fields (EMF): 4G/5G antenna densification is escalating health risks - a global crisis