Do you or anyone you know suffer from tinnitus?

[AARPTeri]

Do you or anyone you know suffer from tinnitus?  What is your experience, discuss with others here!

[WebWiseWoman]

I am sorry you have now experienced this issue millions have experienced for years.

I doubt, however, you never experienced this before. It took me years to recognize what was going on; then I knew I'd ignored the symptoms because I knew from family history there was no relief.

I want to challenge the medical and audiology communities to address the issue of tinnitus, please? As our population ages we need to address those issues most impacting, so to address the future generations' issues!

Please find a cure for tinnitus, please?

#StaySafe

[70sClassic]

The Aarp magazine newest issue nov 2021 an article about major progress with cancer, heart and other terrible life threatening disease

how do we write and ask for article on research on tinnitus,deafness, menieres, the unpredictability of flare ups and the effect this has on living our lives. I can't plan a trip can you?  I can't write anything in stone. No it's not life threatening as in we can die from it but it's plenty disabling 

good luck & good wishes. 

[rosemary99]

I have had both Pfizer shots and my tinnitus did not get worse. It will be 3 years this november. I started out with hearing aids with maskers (could set them to almost 50 different sounds) with my IPad or smart phone. Then that drove me crazy. The only thing that works for me is to keep busy. The first 2 years were awful. There is a company called "Otonomy 313" and they are on the 2nd phase of trials for a treatment for tinnitus. I really hope something can be found.

[lindasmargison]

No effects from the covid vaccine.

I've had RA for 19 yrs and my tinnitus started before that. In the beginning it was only noticeable after exposure to loud noise. Ove rht years it has become louder. I've noticed it's the loudest if I'm tired.

[WalterR3231]

Hello. Just read your comment.  I had my second COVID Pfizer vaccine on Mar 30, 2021. By Apr7-8, I developed Tinnitus.  Not sure if they are related but definetly within a brief window. There was no problem with the first Vaccine.  The noise I heard was from a whoosing to a high pitch and seems to come and go-I just wish it would be gone forever.  Hearing tests showed a some hearing loss as well.  My primary doctor removed some ear wax from my rt ear and that helped alot, but the Tinnitus is still present Lt>Rt. Things that seem to help me:  Pink noise, and fan noise all white noise. I downloaded to my ipad and sleep with it by my head most nights.  My doctor prescribed Hydroxyzine which seems to help calm me and help me get to sleep a bit better. I also use a heating pad over my ear which seems more like a placebo but I will take anything if I think it may help. I also take the OTC bio-flavinoids which seem to be mostly B vitamins but I think they help a little as well. I did file a VAERS Report and notified our cities Health Department. I have hear others have also noticed the Tinnitus after the 2nd COVID Vaccine. Is Pfizer or our wonderful government doing anything to help us afflicted with this?  Finally, an audiologist told me that she uses her hearing aid with maskers (white noise) piped in to over shadow the Tinnitus noise. I believe they also have ear buds that help as well.  What a mess this is for so many of us. If I knew this was a side effect, I would not have got the vaccine.  Hope you get well soon. Walter R.

[t588602d]

I’ve had tinnitus for 20 years now, as a result of the antidepressant I take. It’s an unfortunate potential side effect of the medication. I have severe depression & over the years I tried other medications that were not helpful at all. When I tried the current antidepressant, it changed my life and thankfully it controls the depression symptoms very well. I would love to not have tinnitus but would have to wean off the antidepressant, which would take about 6-8 weeks, and I have no idea how long the tinnitus would take to resolve, if it even would at this point. I also don’t know how bad the depression would get once weaned off the med. Much of the time the tinnitus doesn’t “bother” me because I keep myself busy so don’t think about it. It sounds like white noise & I have no problem going to sleep. I also don’t think it affects my hearing, although I  haven’t had an audiology exam in over 10 years so that’s next on my to do list. I’m 67.

[TerriC23642]

I have also acquired tinnitus from an anti-depressant.  It is a mild medication so I decided to try going off of it and found the tinnitus was not lessened at all.  I feel it is permanent now.

[k955617m]

I have had Meniers for about 25 years. The side effect of that is loss of hearing and tinnitus. I had a hearing aide 10 years ago or so. But it amplified the tinnitus so after a bit of time I stopped using the hearing aide. Even with current technologies I am reticent to invest in a hearing because I am not confident it will work with the tinnitus 

[aruzinsky]

About 25 years ago, I had a brief episode of Meniers and it was one of the worst experiences in my life.  I was so dizzy that I couldn't read large lettering to dial 911.  I remember crawling on my stomach on my lawn while vomiting.  My neighbor noticed and called 911 for me.  I got a ct scan that didn't show anything abnormal.  My doctor told me that it was probably due to a viral infection.

This happened while I had tinnitus, which didn't change because of Meniers.

[RobertB591664]

did you find any relief for the 911 pills?

[Phenelope77]

I had a similar episode... thought I was having a stroke ...My ENT did a VNG test and said “ i’m sure you have a problem I just can’t find out what it is”... approximately three weeks later I woke up one morning with Nightes Nightes horrible horrible experience...

[Phenelope77]

Sorry should have been tinnitus .

[Anitasmolik]

I was diagnosed with Meniere's Disease in 1999. I not only had tinnitus, but dizzy spells, vertigo, and vomiting at times. I was told to keep my sodium level to 2000 mg. or less a day, and limit my caffeine and alcohol. I also got hearing aids, as I lost hearing, mostly in my left ear. Since then, my tinnitus is a lot less. If I ingest a food item with too much sodium (usually in a restaurant where I not always can limit my sodium), my tinnitus goes up, so I know that is the cause.

[lc3507]

I keep my sodium level low and take a diuretic every day. The dizzy spells are less frequent but the tinnitus and hearing loss haven't changed.

[k955617m]

The radical affects of meniers subsided about 5 years ago ( vertigo, etc) but the tinnitus got worse since then. 400mg of magnesium & a daily diuretic while keeping sodium < 1200 MG was the key to reducing the radical part of meniers 

[MichaelB854531]

The hearing aids I recently got apparently have programing that does lessen the impact of my tinnitus.  My tinnitus is in the higher frequency - like being in a jet aircraft - so there is a boost from the hearing aid.

The one thing I wish I could figure out is what triggers my tinnitus to get louder.  Sometimes it recedes into the background to the point I don't notice it, but other times is is so loud it makes concentrating difficult. 

I'm lucky that the frequency of the sound is right where our "white noise" generator's "surf" sounds" are so that I don't have too much of an impact on my sleep.

[NaderF126695]

I have had intermittent luck with trigger point massage around my neck, ear, jaws, temples, and generally some seemingly irrelevant muscles of the head.

Trigger points are produced by some sort of trauma, such as physical or emotional, both causing muscles to tense up, such as when we clinic our jaws because of some emotion.

Although tinnitus seems to have many causes, I find trigger point relief reduces mine to zero for a couple of days. I can't find the causes that reproduce those trigger points. It is some memory in the mind that remembers which muscles are supposed to be kept tense.

I have found such memories for many trigger points in my body, but not for the ones in my head. That is why they come back. If I could find the original memory, I could extend the silence to weeks and even eventually for ever.

Mine is also like yours, a high pitch white noise. And it is amazing when it goes quiet for a day or two. The problem is that finding and releasing the trigger points is time consuming, and as far as have experienced with others, they have to be self administered.

[rosemary99]

Thank you so much for your input. Very interesting. I am following "Otonomy 313" - they are doing trials. I keep hoping for some breakthrough. 

[MonicaF720641]

I have been suffering from tinnitus for a few years in both ears.

[CarryAnne]

The new 5G wireless technology involves millimeter waves (extremely high frequencies) producing photons of much greater energy than even 4G and WiFi. Allowing this technology to be used without proving its safety is reckless in the extreme, as the millimeter waves are known to have a profound effect on all parts of the human body.

There is more tinnitus than ever and it's going to get worse. EMF scientists have petitioned the UN and WHO to call for a stop to the proliferation of wireless technology which although we can't consciously hear it makes sounds that can damage ears as well as interfere with cardiac rhythms, affect brain chemicals & hormones and even damage DNA (think birth defects & cancer). 

U.N. Environment Programme Urged to Protect Nature and
Humankind from Electromagnetic Fields (EMF): 4G/5G antenna densification is escalating health risks - a global crisis

[DebraR301002]

What can WE as citizens do about this??  I am a tinnitus sufferer for years 

[tina440m]

My audiologist ordered special hearings aids that make a different level white noise and they have had great response to the use of them.  Of course at night is going to be difficult for me since then audiologist ordered me as rechargeable so I am not putting new batteries in daily.  I won't miss the newscaster monotone voices in heat nor will I miss the his is that even though I know its not real it try to lake words to match the tempo and rhythm 

[sb84035959]

I have had tinnitus for several years. I have to sleep with a fan to drown out the ringing. Sometimes when it gets really bad, my doctor gives me a prescription to help. 

[WebWiseWoman]

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@sb84035959 wrote:

I have had tinnitus for several years. I have to sleep with a fan to drown out the ringing. Sometimes when it gets really bad, my doctor gives me a prescription to help. 

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Hi, @sb84035959 !

I suffered tinnitus for 2 decades at least. What is your doctor prescribing? Is it for tinnitus or to sleep?

Thanks in advance!

#StaySafe

#WearAMask

[rosemary99]

My doctor gave me a prescription that helps me sleep thru the noise of tinnitus. I am following (otonomy 313). It is a company in trials for tinnitus. First part of trial was successful. What a miracle that would be to have quiet.

[janicep743287]

I have tinnitus really had, especially in my left ear.

[janicep743287]

I do

[CarmenT628021]

Yes I do and for a very long time.

[b725509m]

I have had tinnitus for at least 2 years.  I am fortunate to not let it bother me too much. When trying to sleep I make myself believe that it's just the noise of quietness (if that makes sense).  Every now and then  a single high pitch will interfere with the regular ringing, but it subsides within a few seconds.  I'm not sure how this happened, but I have come to the realization that it's not going to go away so I just learn to live with it.  I don't think I have any significant hearing loss so I just "keep it movin'" and continue with my life with tinnitus as part of it..  However, if there ever becomes a cure, I will be among the first in line (if it's not too expensive).

[lindasmargison]

I have had tinnitus for about 30 yrs. In the beginning it sounded like the electricity generator. Like a high whine, Now it's more like white noise but will still get loud enough it overlaps speech. I have hearing loss that seems to have advanced with the volume of the tinnitus.

The sound lately is usually like white noise but some times seems to be like the sounds the audiologist used at my hearing test. High or medium tones. Occasionally my ear goes 'dead'. No sound at all. I seem to not be able to hear low male voices even with my hearing aids. sigh

My daughter has been having hearing issues for the last ten years. We were told some of our hearing issues can be hereditary.