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Do you or anyone you know suffer from tinnitus?

Do you or anyone you know suffer from tinnitus?  What is your experience, discuss with others here!

AARPTeri
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Newbie

I’ve had tinnitus my whole life. But now that I’m in my 60s it is getting worse. The doctor told me it is the brain‘s way of filling in the space of pieces of noise it misses at certain frequencies. I’m very frustrated by it. Sometimes it wakes me up at night. Mostly I do my best to ignore it. At night I use brown noise. White noise is too high. I wish they could come up with a cure for that horrible ringing and cricket sounds. 

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Periodic Contributor

I’ve read the same thing about the brains way of making up for loss of hearing frequencies. I believe there is going to be a cure very soon after the trials of OTO313 get through 

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I suffer from tinnitus as well. Sometimes it takes me close to a hour to fall asleep. I’ve started taking Lipo Flavonoid Plus for Ear Ringing. Hoping it will provide some relief. At least it comes with a money-back guarantee. 

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Contributor

Does not seem to allow new comments - but I have tinnitus - bad - for over 10 years as a result of being hit in the head at close range by a golf ball.  The hideous noises I heard for a month or 2 after that were unreal - like machines, robots, jackhammers - when that finally subsided - just your normal ringing, hissing noises - it gets worse as the day progresses and sometimes drives me nuts but for the most part, have just learned to live with it. Also on allergy days, I think it is louder.   The doctor has no answers.  I am a singer so I used to get it occasionally after gigs - but THIS is for life now.  I tried the OTC things - useless.  I really wish modern science could find relief for all of us.  Take care peeps!

 

Regular Contributor

I know it is tough living with tinnitus. I have learned to live with it by trying to keep busy. I make sure to take my vitamin in the morning and get lots of sleep. I have been following the trial of OTO 313. They are in the 2nd half of trial. Hopefully they will find a remedy. You can go to the web site OTO 313.

Periodic Contributor

I forgot they had told me if I have Menieres I can’t be in the trials also. Was dx with that last summer a bad vertigo that began with bad migraine the day before. But it all started 3 decembers ago with a cold & I started losing y hearing in right ear. Then the loud ringing which got worse. Hearing aid(s) do not help. I know weather has something to do with ups & downs but can’t pin it down. Seems like the day before a weather change it’s screaming then I will get a break for a couple days.
rosemary gave best input everyone:  watch for the OTO313 trials in phase 2 . 
had tinnitus for years & the Menieres dx.  
I read a lot of you manage to live with it fairly well. For me I’ve had days when it seemed unbearable. Today is a good day. It’s been rainy. That’s not always the case tho.  I’m so thankful for this forum.  TY AARP for awareness on tinnitus .

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Periodic Contributor

Hello again it’s 70’sClassic lol. Elly.  I called them again today thanks to your message. The person who answered said she remembered me calling a couple months ago, I’d heard about it from a friend in research. She said they will call more if I fit the criteria in the future. I’m assuming we all hear about it when it gets approved for use. 

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Newbie

I've recognized my tinnitus only a few short years ago. I experience a hissing noise most of the time. when In quiet environments or when attempting sleep it changes to a chirping sound similar to numerous birds just inside my bedroom.

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Recognized Social Butterfly

Does anyone have tinnitus that sounds like white noise?

Contributor

Yes, my tinnitus sounds like white noise, but it didn't when I first got the symptoms of Meniere's over 30 years ago. Then, I sometimes had tinnitus that sounded like a siren that would keep me awake all night! Going on a low sodium diet, and limiting or completely avoiding  caffeine and alcohol, plus getting hearing aids, helped to decrease my tinnitus. 

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Periodic Contributor

i was dx with Menieres last summer after years of trying to get help with tinnitus . Thankfully I’ve only had 3 vertigo attacks few & far between. I’ve tried hearing aids twice. They didn’t help. I still hear out of left ear. They didn’t improve the hearing in right ear. I find they cause me to be more uncertain of where sound is coming from. no help with tinnitus. I did the other things umentioned. I’m sure mine is weather related. I’ve seen many specialists. Take good care Elli

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Honored Social Butterfly

WORTH THE READ - up-to-date 

NIH:  National Institute on Deafness and other Communication Disorders:  TINNITUS

 

On the right side of the page there are news release links on research and any developments.

 

Find a cure for it and you will be. . . .  RICH . . . RICH . . . . RICH !!

Sometimes I would just settle for some relief !  

It's Always Something . . . . Roseanna Roseannadanna
Periodic Contributor

Gail I have adopted the Roseanne Roseannadanna way of thinking as much as I can. 

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Hello. Thanks for the info. I will read this.  I have mentioned to others that I fond downloading free white noise apps to my ipad and listening to it at bedtime seems to help me a lot. The pink noise really works best for me. There are many of these "maskers" that seem to help folks. Staying busy during the day also seems to help by distracting me. Anyway, good luck with this and if you do find a ure of hear of one, let the rest of us know as well. Wakter R

Honored Social Butterfly

Yep, I have used white noise for years - it nothing else it keeps your mind off of the orchestra.

On a lighter note - I bought a pair of earrings from an artist - there are silver strands of various elongated shapes hanging down from the main body.  When you move, they touch each other and give off a sound like wind chimes but very light - they actually act like white noise while I am out and about.  

 

 

It's Always Something . . . . Roseanna Roseannadanna
Contributor

I have had tinnitus for over 45 years. I have, at times, really suffered as the noise is very loud and NEVER stops. One thing I do to alleviate the noise is listening to music. I am 65 now and it seems to get worse as I age. Not only do I have the ringing, but I have also recently started noticing a noise as if I was standing under multiple power lines (hissing). I have learned to live with it but it still bothers me a lot. I also wear hearing aids. 

Contributor

I've had Tinnitus since March of 2008. In April 2017, I experienced SHLD-"Sudden Hearing Loss Disorder" One moment I experienced a loud tone in my right ear, then it was as if my ear was stopped up. After seeking help, there was nothing that made a difference. I too have hearing aids that can produce white noise. Sometimes it helps, sometimes not.  To help with sleep, I've been taking Lorazepam (Ativan) an antianxiety medication related to Valium. It helps me sleep. I'm open to trying anything.

 

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Periodic Contributor

Hello. Just read your concerns about Tinnitus. Since you have had Tinnitus longer than I, I am certain you probably are more versed in this than I.  But here is my two cents on how I am trying to deal with this, perhaps there is something you can use here I hope. I recently acquired Tinnitus 8 days (Apr 8, 2021) after my second Pfizer Vaccine Mar 30, 2021 I understand others have developed Tinnitus from the Vaccine as well.  So I am new to Tinnitus.   I did submit a VARES report to CDC and notified our local Health Department. They will have links for specific Tinnitus information.  The main things I found that helps me and is by no means a cure is:  Stay calm, Keep busy if you can. The White noise seems to be a big help especially the Pink noise for me. I downloaded a variety of free white noise sounds to my IPAD and set it near my pillow at night, this seems to over ride the internal noise we hear and helps me relax.  My audiologist says there is another free download of White noises that can be mixed and tailored specifically for everyone. Audiologists can also do this as well. I know the hearing aids with maskers (that have White noise built in) may helps some folks, but I do not think you can wear them at night and they can be costly and may not work.  I do take Lipo- flavonoids that my doctor seems to think it may just be a placebo or that it may or may not work. It is mostly B vitamins with their secret mixture. I seem to think it helps me a bit.  I am on my third bottle since April-can be pricey. You can get these OTC at Walgreens or Walmart or Amazon. My doctor prescribed  Hydroxyzine for me just one at bed time.  This helps me stay calm and get some sleep. I also leave our overhead fan on. I am an old Vet not a doctor but I would run your meds by your doctor. I have read that some anti depressants and anti anxiety med may cause and or make Tinnitus worse.  It is important to run this by your doctor. My ENT doctor said there was nothing fixable for me and turned me over to an audiologist, and he would see me in one year. Not much help there. There is a National Tinnitus Group you can find on line. Finally, a build up of  Ear wax on the ear drums can cause this problem as well.  My doctors cleaned the right ear and the noise actually stopped. He did not find wax on the left ear so he did nothing there and that is where the noise I hear now is mostly. I have also found the age can cause Tinnitus in which the ear bones Maleus, Incus, Stapes  stiffen and can cause this problems  In addition TMJ problems can also cause this. Sometime I use  ice or a heating pad over my ears and jaw and this seems to help a bit for me.  I have read that the auditory complex is integrated into the Temporal Lobe of the brain-so is this a brain problem? I need my doctor to clarify this for me. There are great articles on line . I specifically like Mayo Clinic information.   Tinnitus is a terrible problem and it is easier said than done but stay CALM and positive and follow your doctors directions. I just do not believe there is a cure yet but hopefully soon.  Hope we all get well soon.  Walter R

Conversationalist

As of October 2021, nearly 13,000 people have reported tinnitus (ringing in ear) as an adverse reaction to the COVID-19 vaccine, according to the Vaccine Adverse Event Reporting System (VAERS). However, we know that only between  one and ten percent of vaccine injuries are reported to VAERS, so tinnitus is likely affecting between 130,000 and over a million people, many of whom will not make the connection or consider it a coincidence. It isn't. Teh CDC, FDA, and NIH, along with CNN and other major news networks, boycotted Sen. Ron Johnson's panel discussion on Nov. 2, 2021 that included testimonies from scientists, doctors, and victims of Covid vaccine injuries. It's easier to not listen than admit you made a mistake.   

 

Trying to shame people into not speaking about their experiences or punishing them for doing so is bullying behavior that guarantees more people will be injured. If you can't spare the two hours to listen to that hearing, listen to the testimony of the recent widow of Geoffrey Young about her reaction to the pro-vaccine bullying in light of the the death of her 45 year old FBI special agent who immediately sickened and died in her bed hours after receiving the Pfizer vaccine. 

 

Tinnitus: https://fpphysicaltherapy.com/covid-vaccine-tinnitus-ringing-ear-tinnitus/

and 

850k reports in VAERS: https://childrenshealthdefense.org/defender/vaers-cdc-adverse-events-deaths-covid-vaccines/

 

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Social Butterfly

Shame! There is NO EVIDENCE any of the COVID vaccines lead to tinnitus; your misinformation will draw attention away from a very important issue for we 70s-80s gen; many of us suffer tinnitus; and as much as we'd like to blame it on rock concerts 😉 I remember both my grandmothers saying they heard cicadas or crickets all the time. This needs research and treatment; you've got a gen on headphones; what happens when they reach my age and there's nothing to hear but insects?

 

#StaySafe


#VegasStrong
Phil Harris, actor and showman, to John Fogerty of CCR: “If I’d known I’d live this long, I’d have taken better care of myself.”
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Conversationalist

"Six volunteers in J&J’s Phase 3 trial for its COVID-19 vaccine complained of tinnitus. FDA, however, concluded there was insufficient evidence to link the issue to the vaccine." However, there are several hundred reports in VAERS of tinnitus beginning within days or hours of getting the Covid vaccine. It may be a minority symptom, and certainly doesn't affect everyone this way, but denying it is real or that the evidence is insufficient isn't to anyone's benefit.  

 

I suggest you visit Childrens Health Defense dot org for the most comprehensive reporting of neuroinflammatory and other conditions reported after vaccination. I like the idea of a magic potion solution as well as the next person, but when we see such serious evidence of harm including heart attacks in teen agers, then I suggest that we really have to think twice about how decisions are being made, both in our own lives and on a national level. 

 

https://www.drugdiscoverytrends.com/researcher-neuroinflammation-may-be-behind-tinnitus-reports-in-s...

 

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Contributor

You say there's no proof that the vaccine causes tinnitus?  Well, apparently there is also no proof that it doesn't.

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I have had tinnitus for about 15 or more years now.  I thought for many years that maybe I had a bad habit of not paying close enough attention to what people were saying, because I just couldn’t seem to hear what a lot of people were saying, but then I started having major BPP vertigo & in the process of testing found out that I had a significant hearing loss as well as a balance issue on top of the vertigo.  I have no way of knowing for sure what caused them, but 1) a large portion of my dads family are either deaf or extremely hard of hearing, 2) I know that I had major falling issues as a young child, 3) I worked for a major airline dealing with aircraft engines, & 4) I was hit by my parents on or by my ears as punishment as a child, so any or all of those may play a part in my issues.  The tinnitus has gotten worse over the last couple years to where I have a difficult time being able to fall asleep at night.  I do have hearing aids & have had for about 3-1/2 years now, which did help for a while, but has become worse since I got them.  I am interested in the person that said magnesium supplements helped them, because I just recently started taking a 400 mg supplement myself for muscle spasms that are not caused by lack of potassium or electrolytes.  It will be interesting to see if it helps my tinnitus.  Thanks for everyone sharing their situation.

Contributor

I had severe Mereirs disease for more then 20 years. The side effects of that was tinnitus. Nothing really help the menieres. After about 15 years of near debilitating vertigo, I read a study by the Mayo Clinic about research into the affect of Magnesium on Meniers. After a regiment of Magnesium (400 mg) and a diuretic for about 2 years the Meniers essentially went into remission (except for an  de annual flair up). However, i still have the tinnitus because Meniers trashed my inner ear.

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Periodic Contributor

I'm so sorry to read the tinnitus hasn't improved I'm getting hearing aids (again). 11/10. Got diagnosed with Menieres June 1 2021

in this months Aarp magazine the articles on life saving work on heart and cancer and other major health issues doesn't mention going deaf, menieres, etc. we have to keep hoping 

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Recognized Social Butterfly


@JanieF501684 wrote:

  I am interested in the person that said magnesium supplements helped them, because I just recently started taking a 400 mg supplement myself for muscle spasms that are not caused by lack of potassium or electrolytes.  It will be interesting to see if it helps my tinnitus. 


I took 400 mg/day for a reoccurring charley horse in my right calf.  It stopped the charley horse but did nothing for my tinnitus.  During my next blood tests I paid $20 extra to measure blood magnesium because apparently my Medicare Advantage Plan doesn't cover it.  Remarkably, my blood sodium dropped below normal so I suggest that you have yours checked.

 

Magnesium.png  SodiumChart.png

So, I changed to 200 mg/day of magnesium.

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Conversationalist

I hear that tinnitus is a side effect of the Covid vaccine, which also worsens the ringing for those already suffering with the condition. Has anyone had this experience? 

 

American Tinnitus Association: https://www.ata.org/tinnitus-and-coronavirus 

Tinnitus Talk Support: https://www.tinnitustalk.com/threads/i-now-have-tinnitus-after-receiving-the-pfizer-covid-19-vaccine...

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Social Butterfly

NO! As far as my experience, COVID has not impacted my tinnitus, positive or negtive (except when I was completely gone in bed with no ability to move; then I heard nothing).

 

#StaySafe


#VegasStrong
Phil Harris, actor and showman, to John Fogerty of CCR: “If I’d known I’d live this long, I’d have taken better care of myself.”
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Trusted Contributor

I have had tinnitus for many years. It did not worsen after getting the vaccines, and I had the Pfizer vaccines.

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