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Re: Any Stage 4 Cancer survivors, out there????

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I was diagnosed in 1990 with Prostate Cancer. After considering all options went with a Radical Prostatectomy at Stanford. I am now 84 and  a Prostate Cancer Survivor.

Then----In 2007 routine TBC showed a Igm 0f 3,500 idicating possible Blood Cancer. Further testing showed a rare form of Non Hodgkins Lymphoma called Waldenstrom's. Early infusions for a couple of months of Rituxan brought that Igm down continually. to 1,000 plus. 18 months ago my Oncologist arranged for me to receive the very expensive new drug IMBRUVICA free of charge and my most recent Igm reading is 525. And Then   in 2016 I was diagnosed with another AUTO IMMUNE DISEASE Rheumatoid Arthritis. Neither of the diseases ate curable but are treatable.

Now here I am as a 84 year old Cancer Survivor living with minimal assistance in a First Class Assisted Living Facility trying and succeding life as best I can with my walker and periodic aches & pains.

Lon
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Re: Any Stage 4 Cancer survivors, out there????

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I am a 3 time survivor of non Hodgkins lymphoma. I found the Leukemia & Lymphoma Society to be a great resource. I've only recently joined AARP and just saw your post. My first diagnosis was Stage IV. Also check with the American Cancer Society. I wish you well.
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Re: Any Stage 4 Cancer survivors, out there????

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I've had bouts with serious illnesses over the years.  3 rounds with bladder cancer, prostate cancer, quintuple by-pass, etc.  I always get at least two opinions on treatment and options.  For the by-pass surgery I got 3 opinions.  You must be your own advocate.  Just accepting what one doctor suggests is not good.  A surgeon wants to cut.  A stent guy wants to do stents.  A med guy wants to give prescriptions. So you need to cover the options.  Specific types of cancer need a specialist in that type.  Sloan Kettering was our choice for my bladder and prostate and my wife's breast cancer.  So far so good.

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Re: Any Stage 4 Cancer survivors, out there????

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After being diagnosed with uterine cancer 2 1/2 years ago I found a group on facebook for uterine cancer. These ladies are an inspiration, and a wealth of info. They talk about their treatments, and what helps them to get through their treatments. I was stage 1 grade 1, and thankfully did not need chemo, or radiation. Whatever cancer your friend has there's probably a Facebook page for it. 

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Re: Any Stage 4 Cancer survivors, out there????

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I've just been experiencing my first round of panic attacks (I'm hoping beats the alternatives) for the first time since 2002 and losing my sister to brain cancer.

Has anybody done the Formula One tests. It looks or at least sounds like it would/could allow more people to be working for good.

But, geez the length of time to get results from injecting different cancer therapies into cells is a pita, and waiting for results to come up with a therapy that will work.

Who boy, I'm trying to filter my brain but, the cusses flowing through my mind.

Froze
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Re: Any Stage 4 Cancer survivors, out there????

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Message 6 of 17

So sorry to hear of the double tragedy.  Try to stay well Froze in spite of these troubles.

hoc voluērunt
Gaius Julius Ceasar
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Re: Any Stage 4 Cancer survivors, out there????

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Message 7 of 17

Never rains but, it pours,
Inspire sight is good but, doesn't cover bone marrow cancer, at least hasn't spread to organs.

 

And now blessed with a another friend of 50 years being cursed. 

Amazing how many expletives are floating around my mind right now, and that one is a vegan/runner/health nut.

Yes, it doess seem to hit any one despite what they may do to prevent it.

 

I need a nap hoping for a rem stage for first itme in a week, teeth in mega grinding and shoulders are crushed.

 

Frozen

 

 

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Re: Any Stage 4 Cancer survivors, out there????

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Message 8 of 17

Finally found the inspire.com website , too many search engines and too many results, looks good

And an oh, frak add a number 2 friend to the list of teeth gnashing. My shoulders are fine but, my jaws are starting to ache.

Froze

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Re: Any Stage 4 Cancer survivors, out there????

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Message 9 of 17

My friend used to be my in law, now my outlaw guess that's a ongoing family gag.

At this point I'm just watching her decline from being a royal pita (good thing) to someone weakened and facing their own mortality.

Don't know if she's receiving the best of care in FL , so finally found a second opinion in Tampa for her to go to. I'm missing the stubborn pig headed Portuguese outlaw. Fair warning if you don't know my humor, she's been as warped or dry as me. One part Jackie Leonard, 2 parts Woody Allen and a smidge of Don Rickles.

I need to find some bone marrow survivors l, or a site to offer hope. I tried to find Ralph's inspire site but, need an exact web site address.

She went from a Stage 1c to a 4 after chemo, and I'm still having a time wrapping my head around that. Breast cancer metastasized to the bone marrow.

I've had family member survivors in my immediate family dating back to the 50's.
But, I've had the crippling loss of my sister (fellow PITA) to breast cancer metastasized to her brain and death.

After the first 10 blood relations are hit by cancer, both sides of the family - no problem with my shoulders accepting an outlaw into trying to get better treatment, or understand more. My sister was the only loss, every one else survived but, went to Boston for treatment @ the Dana Farber and Deaconess Hospital. 

That's probably enough for now - I miss the PITA, **my sister** My outlaw still lives and After 30+ years, I've gotten used to her and she understands what my humor is and we don't have to apologize for every unfiltered comment that comes from either of our mouths.


Froze

edited for clarity - spell check on iphone drives me up the wall.

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Re: Any Stage 4 Cancer survivors, out there????

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Message 10 of 17

I have a friend with stage 4 colon cancer, age 56.  No more chemo being given as it has not been helping.  He is still active and enjoying life, traveling and going to parties. Feels better without the chemo. He was  diagnosed with stage 4 three years ago.  

 

Frozen I do wish your friend well, I hate that you are hurting.   

hoc voluērunt
Gaius Julius Ceasar
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