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Re: AARP Caregiving Summer Break Contest

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Message 61 of 1,085

We live near The.Great Smoky Mountain Park and it was one of Mom's favorite places. She always enjoyed visiting, seeing the wildlife, and stopping for an ice cream cone on the way home.

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Re: AARP Caregiving Summer Break Contest

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Being a caregiver and traveling with someone who has dementia can be quite challenging.  However, with a sense of humor it can work.

My husband and I are retired and live in FL.  We do our best to spend a month in MI visiting family & friends.  Since my husband developed dementia, it has been more and more difficult to manage such a trip.

Our last trip north I was thinking about a neighbor explaining “respite care” to me.  It sparked something in my brain and I went online and found a website where I entered the parameters of what sort of respite accommodations I was looking for into a questionnaire and hit the “SEND” button.  A few days later the director of an assisted living facility called me to say she thought she had the solution to all my needs.  It turned out that she did.  My husband and I stayed in a delightful “respite apartment” in an assisted living facility complete with nursing care available!  And they even allowed us to have our small ShihTzu dog be with us.  I was in tears knowing that all could be taken care of for just a bit more than a decent hotel room would cost.  And we both got 3 wonderful meals daily in their lovely dining room.  We had a lovely visit and would certainly stay there again.

Our road trip north was always interesting because my husband would tell me I was driving on the wrong side of the freeway.  I would just laugh and point out the signs to him that showed we were either headed north or south (whichever was the right direction at the time) and he would insist we wouldn’t get there the way I was going.  I told myself not to get upset, but just laugh it off.  He would also point at the GPS in the dash and tell me numbers on the screen only confirmed that I wasn’t going the right way.  This just cracked me up even more.  I find humor in the strangest things!

On this trip, my husband was being very difficult to get back into the car after an overnight stay at a motel. After minutes of frustration and sweating, unable to move him into the seat of the car, I looked around to see who might be able to help me.  A gentleman was loading his luggage a few doors down from our room.  I approached him and asked if he might assist me.  He was more than willing and we got my husband situated in his seat.   Don’t be afraid to ask for help when you need it.  There are still lots of wonderful angels out in the world willing to lend a hand.

Recently I needed to fly north because my elderly father had been hospitalized.  I have a home health care aide (who is also my wonderful next door neighbor) stay with my husband while I went north on that trip.  Make sure not to overlook resources that may be right in your backyard!  Reach out to others who are in the same situation as you are and form a support group.  It does a world of good to talk with others who know what you are going through.

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Re: AARP Caregiving Summer Break Contest

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I am a cancer patient and also a caregiver to my 87 year old mom.She is relatively healthy but has a very hard time walking and standing so on are vacation ,she brings her little dog because my father passed away a year ago after my parents being married 68years,it took a toll on the whole family.when we go on vacation ,I try to give her good new memories without taking our vacations with my dad.We get a motel room on the bottom floor so she doesn’t have to go up and down steps or worry about an elevator.if she really doesn’t want to go somewhere than she stays with her dog and I call her often or she calls me often.i try not to go very far alway as it is better with shorter rides.
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Re: AARP Caregiving Summer Break Contest

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Message 64 of 1,085

My husband has moderate  Cerebral Palsy and uses a scooter. We like to take afternoon trips . We live three miles from the beach. Even though we can’t go on the beach because my husband uses a scooter, we enjoy the beach atmosphere by going to the beach library, art galleries and restaurants that are very near to the beach. Always a great view!!

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Re: AARP Caregiving Summer Break Contest

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  1. My husband has moderate to severe Cerebral Palsy and is 66. I am 61 and like to stay active. We take afternoon trips around our area. We live 3 miles from the beach. My husband uses a scooter so we can’t go in the sand but we  go  to the library, art museums  and restaurants close by to the  beach.This is our way of getting the beach in our day, always a great view!!
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Re: AARP Caregiving Summer Break Contest

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Hi my name is Gail I'm a 50 year old mother of 2 sons.My youngest son Jt is 24 and he was born with a rare syndrome and has struggled with heath issues all his life and each year grows worse.I am his 24 hour caregiver and also help care for my elderly mom who has dementia  and a weak heart.Its alot of work and I never get a break from my responsibilities.I do really good to shave my legs😂Its not easy!!! But I never let them see me cry.I make it a point to always smile and laugh at the mistakes and when I have them out together I make it a point to have fun at the negative  or the things that would otherwise sadden me.They both use canes when walking  and are slow we make jokes and say if there was a turtle crawling in peanut butter race  you both would be first place😂And some times when I open the door for them I will say in a loud voice all right run this way and I will point in a certain direction and day let's see who can get to the car first and they do try to out walk each other and laugh while trying to race😂Others people who stand by close enough will see and hear and get a kick out of them and also laugh.Its better for us this way because it's sad and we know we don't want to be sad about it and let it get us too down because we count it a blessing we are together and even though it's hard some times got to keep it as cheerful and happy as I can.As far as traveling with my son we can't travel far because pain of sitting in the car to long.But when we do travel we just go in a near by town and get a comfortable place to stay and look for any adventure we can find as long as It can do it and we make it a point to make the best of memories and take lots of pictures so we can go back and talk about it and kinda re live it.Yes I admit I'm tired and overwhelmed alot but I also count it an honor to be blessed with this precious son and loving mother who count on me! It's alot of sleepless nights and there are days I look like a real life zombie rushing around with them but it's okaye we all can laugh about that too😂

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My mom had married and had me later than usual so she's older than most mothers of girls my age. I'm a young wife and new mother. My mother is not fully co-dependent, so she does not live with us (she does not want to feel like a burden), just lives across the street so that we are nearby in case something happens. When it comes to vacations, we usually make sure that someone trustworthy can come stay with her while we are gone unless it is somewhere that she really enjoys going (like the beach) in which she usually comes with usSmiley Happy

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Re: AARP Caregiving Summer Break Contest

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HI,

 

I take care of my mom.  She has dementia.  I feel overwhelmed at times, so I have to take things day to day minute by minute. I wish we had more family that lived nearer to us.  It has been particularly difficult because of all her hospital stays.  It seems she has been there more than she has been home in the past 10 weeks.  The hospital staff knows us.  I do want to mention that since I took my mom off of all the medications her neurologist prescribed for her, she has been so much better.  She was hallucinating on and more forgetful and falling into delirium.  I thought how fast does this disease take over?  I never thought that is was the medication causing so many problems.  My best suggestion for anyone in this situation is to be extra careful with the meds your doctor prescribes.

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Re: AARP Caregiving Summer Break Contest

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Message 69 of 1,085

Hiymy name is pauline hill im a caregiver for elderly i wish i could have s vacation have not had one in 5 yrs. Im on a fix income

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Re: AARP Caregiving Summer Break Contest

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Message 70 of 1,085

it was a cold night and the best day of my life


@AARPTeri wrote:

 

Summertime often means taking breaks and planning vacations. Both of these can be a bit tricky while caring for a loved one.  Have you traveled with your loved one recently or are you planning to?  

Share your experience here and you will be entered in our Caregiving Summer Contest 2018 and could win one of the weekly $100 gift cards or a chance for the overall winning prize of $500 gift card. Your story may be advice or inspirational!

Review rules here:  https://community.aarp.org/t5/Caregiving/AARP-Caregiving-Summer-Break-Contest-2018/m-p/2023713#M67


 

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