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Recognized Social Butterfly
Posts: 917
Registered: ‎10-09-2009

Re: DNA testing

Message 1 of 50 (134 Views)

Epster wrote:


Agreed: much of my life has been lived out on the front page of the podunk news, so everything is already out there. Aintskeered, cuz I ain't hiding anything. (And yet I so love my privacy: go figure!) 

 

And to the DNA test: SQUEEEEEE! I'm excited to think that you might share your results and impressions about the Nat'l Geo test.  Smiley Happy

 


It will be a few weeks, but I'll get back to ya.

Trusted Social Butterfly
Posts: 1,490
Registered: ‎04-07-2015

Re: DNA testing

Message 2 of 50 (150 Views)

MaVolta wrote:

I figure that by age 65, whatever the government wants to know about me, they already do or have access to. I'm not caving into this notion of paranoia, and it's not like I'm hiding anything. DNA testing is the least of my worries. It's just something to do for fun. All of the companies have privacy statements if you're so inclined to read all of the fine print.

 

I just ordered the test from National Geographic (currently on sale), which is different than Ancestry or 23andMe. It goes into the DNA of your deep ancestral routes. They have recently upgraded the kits to include more information and also some optional features. 


Agreed: much of my life has been lived out on the front page of the podunk news, so everything is already out there. Aintskeered, cuz I ain't hiding anything. (And yet I so love my privacy: go figure!) 

 

And to the DNA test: SQUEEEEEE! I'm excited to think that you might share your results and impressions about the Nat'l Geo test.  Smiley Happy

 

 

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Good health neither comes cheap, nor is it easy.
Recognized Social Butterfly
Posts: 917
Registered: ‎10-09-2009

Re: DNA testing

Message 3 of 50 (159 Views)

I figure that by age 65, whatever the government wants to know about me, they already do or have access to. I'm not caving into this notion of paranoia, and it's not like I'm hiding anything. DNA testing is the least of my worries. It's just something to do for fun. All of the companies have privacy statements if you're so inclined to read all of the fine print.

 

I just ordered the test from National Geographic (currently on sale), which is different than Ancestry or 23andMe. It goes into the DNA of your deep ancestral routes. They have recently upgraded the kits to include more information and also some optional features. 

Trusted Social Butterfly
Posts: 1,490
Registered: ‎04-07-2015

Re: DNA testing

Message 4 of 50 (168 Views)

Calhounwoman wrote:

@Epster, thanks for this discussion.  I signed up for both Ancestry and 123&Me; I was tired of wondering why I was the family "weirdo" (characteristics/interests)--different father, same mother.

 

After comparing both test results, most of my questions were answered and my revealed quirks actually make sense!

 

I try not to worry too much about things I will never be able to control.  From the moment I was born, some entity somewhere has been privy to my DNA.  After participating in taking these tests, I, at least, now have some of the same information that everyone else has. 


@Calhounwoman No, thank you for your comment. Family weirdos unite! Smiley Happy

 

It's a funny age: we're super paranoid about the government collecting and using our data and yet we live online. I guess we are all figuring out what 'balance' means in todays' world. Agreed: the information is worth the risk.

 

 

 

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Good health neither comes cheap, nor is it easy.
Bronze Conversationalist
Posts: 21
Registered: ‎02-22-2009

Re: DNA testing

Message 5 of 50 (202 Views)

@Epster, thanks for this discussion.  I signed up for both Ancestry and 123&Me; I was tired of wondering why I was the family "weirdo" (characteristics/interests)--different father, same mother.

 

After comparing both test results, most of my questions were answered and my revealed quirks actually make sense!

 

I try not to worry too much about things I will never be able to control.  From the moment I was born, some entity somewhere has been privy to my DNA.  After participating in taking these tests, I, at least, now have some of the same information that everyone else has. 

Fey Lady
Trusted Social Butterfly
Posts: 1,490
Registered: ‎04-07-2015

Re: DNA testing

Message 6 of 50 (267 Views)

23andme just put my sister and me in touch with an honest-to-goodness 3rd cousin on my (very elusive) maternal side!  We share a great great grandfather.

 

And she is giving me names to fill in on my family tree. This is incredibly valuable, since not only was I removed from this side of the family as a toddler. My mother, her one sibling and their parents are all dead.

 

This connection is worth much more than any risk of insurance company or governmental bad behavior with my DNA information. (Pretty easy for me to say, though, since I'm only a carrier for one of the tested-for 41 diseases. I do understand the reluctance others may feel.)

 

 

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Good health neither comes cheap, nor is it easy.
Trusted Social Butterfly
Posts: 1,490
Registered: ‎04-07-2015

Re: DNA testing

Message 7 of 50 (474 Views)

Hi @LogicsHere@de8960 and everyone else, I said I’d fish out the 23andme privacy policy after the weekend, and voila, here it is. Smiley Happy This is long. Sorry. Pay particular attention to the 23andme text below that I've highlighted with blue. 


23andme Privacy Highlights:

These "privacy highlights" provide an overview of some core components of our data handling practices. Please be sure to read our full privacy statement.


1 We collect information when you register an account, self-report information through surveys, forms, features or applications, use our Services, upload your own content to our Services, use social media connections and features, refer your contacts to us, share information through various interactions with us and our partners, and via cookies and similar tracking technologies (see our Cookie Policy).


2 We use information in general (i) to provide, analyze and improve our Services, (ii) as we reasonably believe is permitted by laws and regulations, including for marketing and advertising purposes, (iii) to protect the security and safety of our company, employees, and customers as we reasonably believe is permitted by laws and regulations, (iv) to comply with laws and regulations we are subject to, and (v) when you consent, for research purposes, the results of which could be used to develop therapeutics.


CONSENT TO THE USE OF SENSITIVE INFORMATION

 

By agreeing to our Privacy Statement and Terms of Service, you consent to sensitive information, such as information about your health, Genetic Information, and Self-Reported Information such as racial and ethnic origin and sexual orientation (where you provide it) being used by us to:
1 analyze and provide you with our Services;


2 analyze and provide you with information about your ancestry;


3 determine whether you would be suitable to take part in surveys, polls or questionnaires that we are conducting; and


4 monitor and improve existing products or services that we offer or to develop new products and services


We will not use your sensitive information without your consent unless: (i) the information has been anonymized or aggregated so that you cannot reasonably be identified as an individual; or (ii) a legal obligation requires us to use it in some way e.g. a court order requires us to disclose the information.


CONSENT TO THE TRANSFER OF YOUR PERSONAL INFORMATION

 

1 By agreeing to our Privacy Statement and Terms of Service, you consent to the storing and processing of your personal information, including sensitive information, in the USA and countries outside of the country you live in. We use a range of measures to safeguard information but these countries may have laws that are different from those of your country of residence. You also consent to your personal information, including sensitive information, being transferred in the event of a business transition such as a merger, acquisition by another company, or other transaction or proceeding. In such a case, your information would be used as set out in any pre-existing Privacy Statement.


2 We will not sell, lease, or rent your individual-level information (i.e., information about a single individual's genotypes, diseases or other traits/characteristics) to any third-party or to a third-party for research purposes without your explicit consent.


3 We give you the ability to share information with other individuals through features like DNA Relatives. You will always need to take a positive action to share your information, for example, DNA Relatives is subject to an opt-in requirement before we share your information with potential relative matches.


4 You may independently decide to disclose your information to friends and/or family members, doctors, health care professionals, or other individuals outside our Services, including through third-party services such as social networks and third-party apps that connect to our website and mobile apps through our application programming interface ("API"); always review the privacy policies of third-party apps and services before sharing your information.


5 We may share anonymized and aggregate information with third-parties; anonymized and aggregate information is any information that has been stripped of your name and contact information and aggregated with information of others or anonymized so that you cannot reasonably be identified as an individual.


6 We will use your information and share it with third-parties for scientific research purposes only if you sign a Consent Document. Note that we will disclose your individual-level information only if we obtain additional explicit consent from you.


7 There may be some consequences of using 23andMe Services that you haven't thought of, you should read our guide of the surprising things you may find out from using the service before submitting your saliva sample and personal information.


8 If you have any questions about our privacy practices, please email us at privacy@23andme.com or send a letter to the address provided at the bottom of our full privacy statement.

 

The above was taken from: http://www.23andme.com/legal/privacy/ where you can read more, and where you can find link to the full privacy statement.

 

Now my personal opinion: Numerous close relatives on both sides currently suffer from or have died from diabetes. I am not (yet?) even close to being pre-diabetic. Let’s just imagine that by studying my genes/lifestyle and the genes and lifestyles of those relatives, some magical switch can be detected and let’s imagine further that because of this discovery, future generations might be able to get the switch manipulated, saving them from the disease. I’m all over that.

 

On the other hand, paranoia isn’t always a bad thing. As we’ve seen, our increasingly online world is vulnerable to hackers. Data has value. This is one reason I’ve yet to join the cell phone revolution and why neither of us have a Google account. Nor do we have Facebook accounts. Also we do not use the Google search engine. And we have our 23andme permissions locked down. That’s our paranoia, or protocol, should you prefer. Smiley Happy

 

Back to data’s value: the DNA data so far is not mature, therefore it has little ‘street’ value. Once someone finds a way to monetize the data, even if we have by then enacted laws ruling the use of this data, we’re in trouble. But at present, and for the near future, I think we’re OK precisely because the sample size is yet so small, rendering it useless in the scheme of things. (I urge anyone who believes the truth can be found in a small sample to review the presidential election polls…)

 

This 2013 article states that 23andme then had half a million participants and hoped to have a full million within a year. Let’s generously assume that 23andme has by now gathered 10 million saliva samples. That’s still a minuscule sampling of the 8 billion people on earth, therefore, I believe, it is immature data. (Please note I am not a scientist, but a genetics neophyte simply stating her current view.)

 

It is up to the individual to decide their comfort level with DNA testing. For me, the risk of some sort of genetic exposure seems remote, whereas the opportunity to achieve greater insight to my heritage was well worth the risk.

 

Also, since there have been questions and coments on this thread about the ownership of 23andmem here's the wikipage for co founder Anne Wojcicki: http://en.wikipedia.org/wiki/Anne_Wojcicki Read all about her.

 

 

 

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Good health neither comes cheap, nor is it easy.
Info Seeker
Posts: 1
Registered: ‎12-01-2016

Re: DNA testing

Message 8 of 50 (605 Views)
I also had my DNA tested by ANCESTRY and found it to be very general and somewhat inaccurate...
Info Seeker
Posts: 3
Registered: ‎09-08-2012

Re: DNA testing

Message 9 of 50 (1,029 Views)
Ancestry does offer a discount sometimes. Keep checking.
Conversationalist
Posts: 8
Registered: ‎11-07-2015

Re: DNA testing

Message 10 of 50 (1,160 Views)

No one gets the results until the government decides to require a data base for DNA, and walah, all the work has been done for them!