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Recognized Social Butterfly
Posts: 806
Registered: ‎12-05-2009

Re: COPD

Message 1 of 28 (393 Views)

Thought I'd mention this experience since it might be useful to know. My doctor has been giving me samples of a new medication (Bevespi) that comes in an inhaler. The first couple of samples were full size (30 days - 120 inhalations - using 4 inhalations per day), then the company quit with them and the samples are now only for 7 days (28 inhalations).

For some reason I kept some of the supposedly empty inhalers and decided to see how many inhalations are actually in the 7 day ones. I have just discarded the first one I tried this with......got 90+ inhalations! The difference between 28 & 90 inhalations is pretty significant, so I'm glad I discovered this. No idea why the drug co. would put so much extra in a 7 day inhaler, but if the same holds true with the other ones, it will certainly stretch the time I have them since some day the drug co. will end the samples.

Info Seeker
Posts: 1
Registered: ‎06-20-2015

Re: COPD

Message 2 of 28 (972 Views)

If you really want to connect with other people you should join a group called "Patients like me". If you have multiple ailments you can join a group for each illness. Sometime you can even find someone with all your ailments.  I have had COPD for about 7 years. I was using 2 different inhalers. When my copay went front  $6.40 each to $47.00 each. Since I stoped using my inhalers, i cough a lot more sometimes I bring phlegm up but not always. I am always short of breath, but I'm getting by. Hopefully I won't have to put off my inhalers.

Info Seeker
Posts: 1
Registered: ‎06-18-2011

Re: COPD

Message 3 of 28 (2,191 Views)

Cany1956,

                     I do know you need a good Pulmonary  specialist !! They can tell you anything you need to know and put in an action plan. They should run a number of tests for your lung function and prescribe the appropriate plan for you. I've been diagnosed with COPD for  4 years or more can't remember exactly. I use two inhalers per day and NO O2, everything seems to be going OK . COPD never go's away, but you can stop the progression of it by doing what your Pulmonary Doctor says. You can NOT SMOKE,you can NOT put anything into you LUNGS except clean air !!! I hope this helps, but their is no magic cure for what we have, I'm sorry I wish there was !! 

                                                                            STAY STRONG

                                                                                         WB


CANY1956 wrote:

I WAS DIAGNOSED IN JUNE 2014. I WAS FINE UNTIL OCTOBER OF 2016 WHEN I WAS HOSPITALIZED FOUR TIMES FOR PNEUMONIA AND HIGH BLOOD PRESSURE. I HAVE BEEN ON OXYGEN THERAPY AT HOME SINCE NOVEMBER. I NEED TO TAKE A SLEEP TEST TO FIND OUT WHAT MY TRUE LUNG FUNCTION IS AND HOW FAR ALONG I AM IN MY COPD. I KNOW WHAT THE STAGES ARE. MAYBE I ASKED THE WRONG QUESTION. I WANT TO SPEAK WITH PEOPLE WHO HAVE COPD TO GET THIER TAKE ON THE DISEASE AND IT'S PROGRESS. THANK YOU FOR YOUR INPUT,I APPRECIATE IT.


 

Info Seeker
Posts: 1
Registered: ‎11-16-2009

Re: COPD

Message 4 of 28 (2,408 Views)

Was diagnosed with COPD a few months ago. Using Breo Ellipta, as it was a little cheaper than Spiriva with my insurance (still not cheap).. I try to go every other day to save $$. 

Info Seeker
Posts: 2
Registered: ‎01-02-2011

Re: COPD

Message 5 of 28 (2,663 Views)
pulmonary rehab... I tool it. Shows one how to exercise and expasnd lung capacity without compromising breathing
Info Seeker
Posts: 2
Registered: ‎01-02-2011

Re: COPD

Message 6 of 28 (2,664 Views)

I have the same issues... try Dulera. I use 100mcg/5mcg $245 per 120 puffs with a script cash no insurance. Spiriva et al made me cough and phlemgy

 

Conversationalist
Posts: 7
Registered: ‎08-19-2010

Re: COPD

Message 7 of 28 (3,629 Views)
I HAVE A PULMONOLOGIST. I WILL CHECK OUT A PULMONARY GROUP.THANKS
Info Seeker
Posts: 1
Registered: ‎02-28-2017

Re: COPD

Message 8 of 28 (3,639 Views)

Hello. As with COPD, he should seek out a Pulmonary (lung) MD for this disease. Ask for physician that specializes in this diagnosis. If he's been diagnosed already, then it seems like he has started the process. There are new drugs being released just for this affliction. Pulmonary rehab could also help manage symptoms. Good luck to your brother.

Bronze Conversationalist
Posts: 17
Registered: ‎04-11-2016

Re: COPD

Message 9 of 28 (3,695 Views)
I have been having C.O.P.D since late 90' . I use to smoke a pack a day and chainsmoke . Then I stop smoking cigarettes it was very hard and have cold turkey. I have friends that didn't smoke help me with all cold turkey and nervous paving back and forth. I'm very glad that they were there for me. I still have to take my medicine and. And also I go to my.C.O.P.D confer meeting every November right before thanksgiving. I learn so much how take care my breathing and myself. I love it
Conversationalist
Posts: 6
Registered: ‎08-17-2010

Re: COPD

Message 10 of 28 (3,801 Views)
Pulmonary classes are usually given by a local hospital; Google your hospitals and check with your pulmonologist. They usually have the info. They attempt to teach you how to breathe with an ailment and if you have been prescribed inhalers do use them.